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  1. Sean

    Pacing - different meanings of the term pacing in ME/CFS and other conditions, and the problems this causes.

    That explains a lot. Contradicted even by the actual evidence.
  2. Sean

    Well-known, famous people with ME/CFS (public thread)

    More than 40 years for me – my entire adulthood – and I still struggle with it every day, especially as I am now too old to have any real chance of a half decent life, even if a perfect cure became available tomorrow. There is just no way back from such an extreme degree of loss, abuse, and...
  3. Sean

    Disabled speaker barred from university debate on assisted suicide

    Or just carried them and their wheelchair up the stairs.
  4. Sean

    Post Covid-19 Condition as a Diagnosis: A Qualitative Study on Epistemological Tensions Among Experts in Sweden, 2025, Bredström and Jämterud

    Agree, though worth adding that not all bias is against minorities. Women are not the minority of the population.
  5. Sean

    Covid-19 vaccines and vaccinations

    Still recommended and free for all here in Australia, though not compulsory. I just had a booster on Monday, and it has knocked me about a bit. Nothing too serious, but I have had better weeks. :ill:
  6. Sean

    Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour

    Few places hide bigotry behind a veneer of respectability more than psychiatry and psychology.
  7. Sean

    Effect of 8-week exercise-based rehabilitation on immune cell counts in Post-COVID syndrome following hospitalisation: a RCT, 2025, Bishop

    +1 I am increasingly of the view that the whole formalised rehab approach, with few exceptions, has been a disaster. It has metastasised out of control way beyond any benefit to the vast majority of all patients. Important distinction. Rehab basically doesn't work for ongoing active disease...
  8. Sean

    Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour

    Yep. He is giving the people in political and economic power something they desperately want: pseudo-scientific, pseudo-medical, pseudo-compassionate excuses for their shitty policies and decisions.
  9. Sean

    News from The Netherlands

    Arse covering. Follow the 'protocol' and you will be safe from having to face the consequences of doing so.
  10. Sean

    Guardian piece on"Lyme"

    This is the line the PACE crowd push about any bad outcomes from GET. They claim it is all just inappropriate implementation by inadequately trained therapists, not anything wrong with the therapy itself. I wouldn't even describe it as a model. More like a lurid fantasy they cannot let go of.
  11. Sean

    Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour

    Whatever hold this guy has over the political establishment must be powerful indeed to be allowed to endlessly fail upwards. What next? Sainthood?
  12. Sean

    Specialised care for severely affected ME/CFS patients, 2025, Saugstad

    Dec 2023, according to who.is
  13. Sean

    The function of ‘functional’: a mixed methods investigation, 2012, Kanaan et al.

    The gold standard for perverse incentives. Par excellence, one might even say. It's from The Big Short, about the corruption in the US housing market and its eventual collapse in 2008, and how little accountability there was for it. There are two other movies about that human-made disaster...
  14. Sean

    Australia: National Health and Medical Research Council (NHMRC): Development of ME/CFS guidelines

    The next meeting of the ME/CFS GDC is planned for late October 2025 and will focus on gaining a shared understanding of the GRADE (Grading of Recommendations Assessment, Development and Evaluation) methods approach. Uh-oh. :grumpy:
  15. Sean

    "COVID Isn’t a Cold. It’s Cigarettes All Over Again" by David Ramsey

    :emoji_clap::emoji_clap::emoji_clap: It is impossible to overstate how much long-term damage is being done.
  16. Sean

    Long COVID associated with SARS-CoV-2 reinfection among children and adolescents in the omicron era (RECOVER-EHR): a retrospective [...], 2025, Zhang+

    Without decisive action, the long-term societal cost of long COVID will continue to rise. FFS, when are governments and the general community going to accept that improving indoor air quality, and basic masking, are two of the best and most sustainable protections we have against all air-borne...
  17. Sean

    Adam Mastroianni - blogs on research methodology

    Fun fades, but irritation is infinite. IIRC, Claude Shannon, one of the greats of 20th century science, said he was not motivated by any grand noble principles or ideals, like the search for truth, or wanting to do good for humanity, etc. No, it was simply being irritated by the flaws and...
  18. Sean

    Australia: New network to support ‘often misunderstood’ conditions

    Don't expect any help from the RACGP.
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