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A thing of beauty --- the Journal of Psycbosomatic Research --- makes me think of the Q-Con, Annual Gaming Convention!

Bear in mind aptamer-based technology Maureen Hanson's published paper*. If this turned out to be a common problem then it might be possible to find something in the blood i.e. to base diagnosis on - rather than biopsy's. * https://www.mdpi.com/2227-7382/9/1/6/htm

Yip blunder on and keep paying the mortgage --- the lovingly polished (dud) meal ticket --- I mean what's not to like --- the waste of tax payers money better spent on research likely to benefit people with ME/CFS --- the misrepresentation of people with ME/CFS and their consequent...

How to write an article without acknowledge you could do better/good quality studies i.e. using the methods you @Peter Trewhitt set out! I think @Jonathan Edwards is correct i.e. they (surely) must know it's possible to do carry out a properly validated study. Being Mr Angry just now but...

So basically they are saying all "behavioural and exercise interventions" are crap.

I found this link to the Webinar https://solvecfs.org/you-can-power-the-next-wave-of-m-e-research/

With regard to comorbidities what % of people are eliminated, from the intramural NIH, on that basis? Just to show my ignorance here but would mild [heterozygous] disease not have been picked up by Doctors? Need to look at he above links etc. Thanks.

Maybe drop Maureen an email - she may be interested.

"Conclusions We report a novel association of RNF123 locus with CWP and suggest a role of ATP2C1, consistent with a role of calcium regulation in CWP. The association to COMT, one of the most studied genes in chronic pain field, was not confirmed in the replication analysis." Here's a paper I...

Did they do anything right in that study [PACE] -- they gave the absolute value for the improvement with GET without subtracting the value from the control group EDIT - see @Jonathan Edwards comment: "I don't think they did that in any meaningful sense. They stated the reported improvements in...

Yip and blue pills would be cheaper! This suggests that the there was no (positive) response from CBT in PACE: "There was no significant improvement on any of the [PACE] trial’s objective measures, such as numbers returned to work or levels of fitness."...

Reminds me of something James Coyne said i.e. [from memory] you can use psychological therapies to help someone deal with the fact they have e.g. got terminal cancer but it's not a treatment for the underlying disease. So in ME/CFS psychological therapies may be useful in helping you deal with...

I think this is @Jonathan Edwards comment - the (dud) meal ticket lovingly polished -- how much money have they got certainly £millions - £10 million in total? Plus that provides the Government with an excuse/response - funded £xmillion -- children --- all the usual buzz words. I wonder if we...

Looks like the usual s--t - different words though and we've now got ACT instead of CBT. I recall @Simon M advice i.e. unblinded study (requires) objective controls. E.g. every young person seems to have a smart phone so why not, at the very least, use that to track their movements/activity -...

Might be worth asking BBC Radio 4 "More or Less" (not sure when the next series is) they run a statistical fact checker - facts which are in the media and whether they're accurate.

The other thing is that if funding gets allocated to things that don't actually improve your health/well being then that looks like money that would be better spent elsewhere. E.g. Chris Ponting has been funded to do a GWAS study, something that may help to understand the underlying cause and...

Try harder - only 11 out of 11! Yea and ME/CFS is more than likely not (B-cell/autoantibody) autoimmune - if it was then rituximab would have worked.

[EDIT] Just to demonstrate that I haven't read the previous posts or indeed hadn't read the abstract this is about Long covid and I was ranting on about autoimmunity in ME/CFS - oops! I seem to recall all of this re ME (same "diagnostic" test for autoimmune antibodies?) - which sort of...

What struck me was how accurate the comments were on this forum e.g. from @Trish - cutting Dr Shepherds input @Michiel Tack fact that the personal story of Paul Garner wasn't balanced by a story from the patient side -- @Simon M concerns about reporter --- The review on this forum pretty much...

Response from BBC: "Dear - Thank you for contacting us with your concerns about our report on 'Newsnight' on 9 April 2021. We’ve watched the piece and spoken to the programme team and we believe this was an impartial report on an issue very much in the public interest. Professor Paul Garner...