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Wonder if we could try to challenge this i.e. more public money wasted on flawed research trial - ask MPs to ask parliamentary questions - link up with Long covid groups More of the "meal tickets" @Jonathan Edwards was talking about oh and vultures

Your comments remind me of a feature on "Trust me I'm a Doctor" or some such - Michael Mosley was one of the presenters. Anyway this Doctor did a feature on autoimmune NMDAR encephalitis [presented much like schizophrenia] i.e. which was treatable by immuno-suppressants. She said that when she...

Should look at this; started to scan: "synthesise evidence" - looks like a pretty accurate summary! "YOU ARE A COORDINATING EDITOR OF THE COCHRANE REVIEWS THAT COLLECT EVIDENCE TO INFORM HEALTHCARE DECISIONS, DID YOU FIND ANYTHING USEFUL THERE?" to misquote @Caroline Struthers "no, they were...

Yip from memory Jaime Seltzer said that "these approaches (BPS) don't work so why waste money on them"?

You're in the European Union so bear in mind there's been some lobbying there too e.g. check out this facebook group and tis website #MEAction European Union (EU) https://europeanmecoalition.com/

PACE being OK - Wow --- hasn't she listened to any of the academics who now teach i.e. how not to do research?

Entirely reasonable --- specifically I think you're correct i.e. the average licence payer/viewer will not have realised that Paul Garner was talking s--t. Yea the issue of vaccinating children was a strange one to link - surely the issue is whether it helps to end the pandemic --- keep people...

I has a fleeting feeling that the presenter (Deborah Cohen) may have used that "trick" lawyers are supposed to use - when the other side are making your case for you, just shut up and let them - in this case Paul Garner. I think @Jonathan Edwards may have suggested that medical professionals are...

Brilliant -- I'm probably being inappropriate but the comment re the unnecessary surgical experience was hilarious --- I think he'd make a good straight man/stooge --- someone tell him he's wasted in medicine --- after Newsnight he should contact Alan Bennett

Psychiatry's loss was our loss! But yes, his appearance on Newsnight reminded me of @Jonathan Edwards "that will do nicely". If NICE were in any doubt, re what they were up against, then the Newsnight program certainly provided clarity.

EDIT - Thanks for the heads up; found this via Google search: "PACE trial started on 18 March 2005" https://journals.sagepub.com/doi/10.1177/1359105317703785

2nd. attempt (2000 characters): "I wish to complain about the report on Long covid & ME/CFS - BBC2 Newsnight - 9th April. Reference to 2005 [PACE] study i.e. on whether graded exercise therapy [GET] plus psychological support [CBT] were effective in treating ME/CFS. When the study protocol...

Maureen Hanson's team have published MRS data showing low levels of glutathione (a very important antioxidant). Would that suggest that neuroinflammation is a relevant research area & free radicals/oxidate stress?

Can't remember the figure the EU uses for classification as a "rare" disease @Michiel Tack - 0.05%? Numbers I recall quoted for ME/CFS are 0.4%.

Did they use the same "older" ligand in both studies?

Here's a first attempt at a complaint re BBC2 Newsnight program -hope there isn't a limit on the amount of text! I wish to complain about the report on Long covid & ME/CFS - BBC2 Newsnight program on 9th April. The program highlighted that: “a very controversial part of medicine that is...

Thanks for the transcript. Bear in mind that NICE has been hung out to dry on this - as per the House of Commons debate. A Government relies on the electorate and engaging in some nasty campaign against people who are ill (ME/CFS), appears to me to be a dodgy strategy. OK they are, in my...

Bumped into a neighbour, a retired journalist, who worked at the BBC 20 odd years ago. They suggested that you complain directly to the BBC i.e. rather than another media outlet. If you complain to another media outlet then the BBC will simply respond "we have not received any complaints". His...

Extending the period between doses is about getting more people first doses. The UK had 40 million people (50 and above) with their first vaccine by end of March. Giving 20 million people 2 doses would still leave a lot of more vulnerable people (over 50) unvaccinated. So it's a decision based...