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Anyone know if there's a transcript of the Newsnight interview? I can re-listen and note the extracts but a transcript might be easier. Thanks.

"hypothyroid" - interesting. I had wondered if it was relevant re ME in the past.

My initial impression was that it was embarrassing i.e. Paul Garner doing dumbbells on his lawn ---- I thought he was deluded. I actually wondered if he'd been ill. I need to watch it properly, it was like one of those programs that make you cringe, so I didn't watch it properly --- why was...

If you hold those views then it may be worth complaining --- but yes if it's contrary to journalist/BBC code then that's relevant. I know someone who's a retired journalist might ask - might not get a reply though!

Interesting. I need to re-watch but I think I recall some comment about "attacks" "militant patients". To me the remarkable thing was the way the BPS shysters managed to deflect the argument. We know now that NICE downgraded the contentious studies [PACE] and we know they wouldn't release the...

Not sure if you guys have seen this yet but check out there's an interesting feature on BBC2 Newsnight now - including Paul Garner! EDIT https://www.bbc.co.uk/iplayer/episode/m000tzkd/newsnight-08042021 around 32 minutes Discussed here...

[possibly misattributing here] I think you've touched on the concern that we're saying no to CBT & GET but not having an alternative - I assume the alternative would be to fund specialist Doctors and support research.

Thanks @Trish I'll go with this* *"NICE has reviewed clinical trials of CBT and graded exercise therapy for ME/CFS, including the government funded £5 million PACE trial, and found all the studies to be of low and very low quality, and not to provide evidence that these treatments are...

Can you be specific i.e. what "facts"? Also, re "how the parliamentary questions system works" what are you thinking of? Thanks

Thanks for the feedback everyone. Here's a redraft*; grateful for your comments. *"The Government funded (£5 million) PACE trial set out to discover whether cognitive behaviour therapy (CBT) and graded exercise therapy (GET]) are safe and effective forms of treatment for myalgic...

Yea refusing to release the data --- until the outcome of the court case (which followed the FOI hearing) --- doesn't really fit with the data being OK/understandable mistake.

This jumps out "by the end, a visit to a witch doctor begins to feel like the most sensible medical intervention in the book". If that's the most these folks can offer, then maybe they should just give up on the "medicine" and move into writing full time - fiction that is.

To be fair @dave30th this is a much more positive take on the potential benefits i.e. it puts the system (civil servants & politicians) on notice that their actions (in this case failure) are being scrutinised.

At a simple level the Secretary of State for health and social care [responsible to the House of Commons] is responsible for our (nationalised) health service. MPs (members of the house of commons) have an allocation of parliamentary questions and this one is for the Secretary of State for...

As far as I'm aware the MRC: is publicly funded i.e. tax payers money; and funding comes from its sponsor [Government] Department. However, that would not necessarily be the Department of Health and Social Care (UK) e.g. it's probably primarily funded from the science budget (different...

You wouldn't/couldn't make it up --- you're cognitively impaired, due to an underlying (biological) illness, and they suggest CBT --- as if the world wasn't already confusing enough --- try CBT! Thanks I'll re-draft.

Thanks for the feedback. Here's a revised draft re a parliamentary question to the [Westminster Parliament] Secretary of State for Health: "The PACE trial set out to discover whether cognitive behaviour therapy [CBT] and graded exercise therapy [GET] are safe and effective forms of treatment...

Having briefly Googled I'm not reassured, the need to separate the financial rewards from the patients interests still applies.

EDIT - redrafted (see @Jonathan Edwards comment below) Possibly slightly relevant i.e. in terms of incentives in medicine. Friend mentioned that becoming a GP is the only opportunity to run your own business in the NHS I think the Australian system separates the (financial) incentives by...

I'm wondering if this could be concerning i.e. "the difference between fatigue and the perception of fatigue". Is this the line those focused on psychological interventions take? You're not really unwell you just think you are. Don't get me wrong I'm not opposed to psychology but I think...