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  1. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    What is more, and highly relevant, is that when those negative results came out patients accepted them because the trial methodology was robust, despite it being a disappointing result. Whatever else we might be, @MrMagee, hypocrites we are not. We hold all claims and hypotheses, including our...
  2. Sean

    Which cognitive-behavioural factors play a role in the reduction of post-COVID-19 fatigue following [CBT] and care as usual?... 2025 Kuut, Knoop et al

    A previous randomized controlled trial (RCT) showed the efficacy of cognitive behavioural therapy for fatigue (CBT-F) in relieving severe fatigue in a subgroup of post-COVID-19 patients as compared to care as usual (CAU). That would be the ReCOVer study, which used subjective self-report...
  3. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Do it! That kind of money would buy a lot of high quality research. :sneaky:
  4. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I will continue to judge the claims from Paul Garner, and everybody else, on the strength of the evidence and the logic of the arguments they present, and how they handle legit criticism of it. Garner has persistently and grossly failed on all counts, more than a little dishonestly (e.g. NICE...
  5. Sean

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    I like the idea of dueling acronyms. Two can play that game. :devilish: advice about how to make best use of the energy a person have without making their symptoms worse cognitive behavioural therapy (CBT) medicine to control symptoms such as pain and sleeping problems 1. Leaving aside the...
  6. Sean

    Professor Peter White

    plain gaslighting Bordering on plain old abusive bullying by somebody with immense power over patients.
  7. Sean

    Change in healthcare utilization before and after COVID-19 using data from 1.5 million individuals 2025 Bygdell et al

    In the abstract it sounds good. But the devil, as we have learned the very hard way, is in the detail. What kind of services? Run by? Based on what 'models'? Etc.
  8. Sean

    News from Republic of Ireland

    My view is that health care workers/researchers should get the same treatment from the system that non-HCW patients get. Might sound harsh, but I can't think of a better way to wake them up to how bad and desperate is the situation for us. Don't enjoy saying that, I wish it were not so. But if...
  9. Sean

    Evaluation of Stereopsis Performance, Gaze Direction and Pupil Diameter in Post-COVID Syndrome Using Machine Learning, 2025, Knauer et al.

    Exactly the sort of stuff that needs a lot more attention by researchers, IMHO. I think there is a whole zoo of basic sensory-motor-cognitive clues hiding in plain sight, just waiting to to be objectively measured, and which they can be with current technology and understanding.
  10. Sean

    Effect of Motion-Controlled Video Games-Based Virtual Reality Exercise on Patients with Post-COVID-19 Condition…, 2025, Polat et al.

    6MWT, SF-12 physical and mental components increased, But the only objective test used (6MWT, and relegated to a secondary measure) showed no benefit for key result of group difference (p = 0.34). Which is the standard pattern for these kind of studies. They did acknowledge they did no...
  11. Sean

    News from Germany

    Psychological framing refers to attributing symptoms solely to psychological causes. Or to any inappropriate degree, really. It is about false attributions, primary or secondary, major or minor. It never ends well and simply should not happen.
  12. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think Garner genuinely believes in what he is saying, which is the real problem. If you have to choose between dealing with a crook or a believer, choose the crook. At least they know that when the game is up they need to bargain realistically to cut their losses. Unfortunately believers will...
  13. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Dear Professor of Evidence Based Medicine Could you please cite the evidence that NICE "banned walking"?
  14. Sean

    News from Austria and Switzerland

    I would class that stuff more as management than treatment. But point taken.
  15. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    So many selective and arbitrary assumptions and interpretations. Just sophistry and misdirection. As usual.
  16. Sean

    News from Austria and Switzerland

    Above all, the goal is for patients to receive a clear diagnosis so they can receive appropriate treatment. What treatment? We barely have any ideas for even the most basic and modest management, let alone any proven active (and safe) treatment.
  17. Sean

    Construct validity of self-reported and interview-guided administration methods of the Danish version of the [PCFS], 2025, Sørensen+

    Yes, the correct interpretation being they are all equally bad and useless, and worse in being potentially misleading.
  18. Sean

    Prevalence of depression, anxiety, fatigue, and headache before and after long COVID onset: a case–control study in … Region Stockholm, 2025,Lindblom+

    Not entirely. As primary causal factors, they have no demonstrated role, despite endless and often quite dishonest attempt to portray them as having. But as secondary exacerbating factors, they are definitely a thing. Meaning misdiagnosis, mistreatment, and the poverty and despair, etc, etc...
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