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  1. InitialConditions

    Stanford MECFS working group meeting 2023

    I've seen his name before, but I'm not familar. I just saw this: https://www.journalismfund.eu/supported-projects/chronically-tired-wallet-professor-de-meirleir Has anyone got an English version of this article?
  2. InitialConditions

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    I am also now blocked—by their main page and one of the RB team—since our discussion here a few weeks ago.
  3. InitialConditions

    Moving from laptop/computer to iPad/tablet - did it help?

    Thanks for your replies. I should have added that I struggle immensely with screens, and have done for many years. Phone screen is better. I think just because there's less information to be processed by the brain, given the smaller size (the screen, not my brain).
  4. InitialConditions

    Moving from laptop/computer to iPad/tablet - did it help?

    Did you primarily use the touchscreen to type, or did you also have a keyboard. There are those keyboard cases for iPAD, which may be an option for me.
  5. InitialConditions

    Moving from laptop/computer to iPad/tablet - did it help?

    I am considering geting an iPad because it might be easier to use given I seem to be going downhill. I currently have a Macbook Pro. I can think of several benefits over a laptop, but I'm wondering if anyone here has done the same, and did it work out for you? There are some things I know I...
  6. InitialConditions

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    Paul Jenkins has amased lots of negative reviews here: https://www.ratemds.com/doctor-ratings/4012985/Dr-Paul-Jenkins-London-ENG.html/
  7. InitialConditions

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    Yes, but there are mixed findings about these autoantibodies in ME/CFS so these are likely next to useless to support a diagnosis. "Auto-antibodies against the Beta-2 adrenergic receptor, auto-antibodies against the muscarinic cholinergic Receptor 3 (M3) and auto-antibodies against the...
  8. InitialConditions

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    I am not aware of any! EDIT: Except the Myhill mito tests, which were a load of nonsense.
  9. InitialConditions

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    That's exactly my point! I don't think we can trust the tests—as has been shown—so its a very hard diagnosis to make, unless there is clear evidence of a bite / rash / acute infection—although I know these are not always present. How did you get your Lyme diagnosis?
  10. InitialConditions

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    That's not what I was saying. Of course you can. I am talking about getting both diagnoses for the same set of symptoms. Not when one clearly follows the other, with a gap in time (particularly if there's evidence of a tick bite / acute infection).
  11. InitialConditions

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    I am talking about people who search for a diagnosis and then get a diagnosis of ME and Lyme. Often there is no evidence of ever being bitten, or of an acute Lyme infection.* I don't know the specifics of your case. * I was speaking to someone just recently who got unwell after a vaccination...
  12. InitialConditions

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    Yeah, I see a lot of this. Seems highly unlikely. Occam's Razor.
  13. InitialConditions

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    I think this is a real problem. You can get a positive Lyme disease test if you keep trying. And the tests are not accurate.
  14. InitialConditions

    ‘Oh my God’: live worm found in Australian woman’s brain in world-first discovery

    The stuff of nightmares. Thought I'd probably take a brain worm over this M.E hell.
  15. InitialConditions

    Miguel Bautista’s CFS Recovery ‘recovery jumpstart’

    He was a guest on some grifter YouTube channel or podcast recently, where he's saying he wants to 'make a million'.
  16. InitialConditions

    Has anyone else here struggled with a persistent verruca?

    Thanks, may try this. Some people say just covering the verruca (e.g., with duct tape) can help, so maybe the combination of a plaster with salicyclic acid might work.
  17. InitialConditions

    Has anyone else here struggled with a persistent verruca?

    I think they got rid of verruca treatment as standard in the NHS. Might vary by trust, but it's definitely not like it used to be. I had a wart frozen when I was at school.
  18. InitialConditions

    Has anyone else here struggled with a persistent verruca?

    I've had one for the best part of a decade. At various times I've tried to treat it, mostly with over-the-counter gels such as bazuka. In Feb–March I had several sessions with a podiatrist, including 2 x debridlement and one quick session with a 'verruca pen' which seemed to be some sort of...
  19. InitialConditions

    Michael Maes M.D., Ph.D. Professor, researcher

    His work on ME/CFS has come up on the forum a few times. I have stated here before that I get bad vibes from his work, but I wasn't aware that he was publishing dozens of papers a month, which, as anyone in academia will tell you, is ludicrous.
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