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I can raise this within FME. We are working on trying to improve NHS ME/CFS services' websites, and obviously this main NHS page is important.

This is just a copy of an article in local news, last week. I knew I had read it before. https://www.gazetteandherald.co.uk/news/20110501.saskia-james-immensely-proud-working/ I'm surprised BBC does that.

This is essentially the NICE long covid definition/criterion. My neighbour had covid a few months ago, and still has a cough that hasn't resolved. She has long covid according to the NICE guidance, and this is why I'm so adamant that unless people stop conflating these cases with the ME/CFS-like...

It's probably an accurate reflection of what they offer. Note they are talking about their in-house service (https://www.actionforme.org.uk/get-support-now/our-healthcare-services/healthcare-services-for-me/), which I think is now managed by ex-ME Trust staff.

Try again in a week or so!

If it's meant to be open access, then that download link is broken.

The note about downloading the PDF is confusing. I don't think this is open access.

ScienceDaily piece: https://www.sciencedaily.com/releases/2022/05/220504110408.htm

It is mostly due to workload issues in the case of Nina, but there have been some disagreements. PAG (through Opal) rightly raised the issue that having a clinician involved in the NICE implementation work is vital given Nina's departure.

Presume it is risk of bias.

This thread is really useful, and I haven't come across it before. The 2019 thread is in the 'General ME/CFS news' forum. This thead is in the 'General ME/CFS discussion' forum (which is rather sparse). I would suggest the best location for both threads is in the 'ME/CFS research news' forum...

The APPG pages haven't been updated in a while and minutes are not routinely published there.

"APPG Report. Charles advised publication is due to be launched on May 25th at 1530 at Portcullis House, Westminster." I don't know anything about this.

Minutes from April Steering Group meeting: https://forward-me.co.uk/13th-april-2022/

https://www.bbc.co.uk/news/health-61255733 Seems that overnight the draft updated NICE guideline for osteoarthritis was published: https://www.nice.org.uk/guidance/indevelopment/gid-ng10127 I'm getting terrible flashbacks of this time last year.

I think you forgot the link. https://www.sciencenews.org/article/50-years-ago-psoriasis-cause-infammation-skin

I don't know enough about this area, but running a charity (The Optimum Health Clinic Foundation) alongside a LTD company (The Optimum Health Clinic) seems suspicious. From the accounts, it seems that the charity's income is mostly from the LTD, and that this money is used on overheads such as...

This is Maes' (co-author) pet-theory for ME/CFS (and other chronic illnesses). He is simply applying it to LC now. Nothing but a hypothesis paper.

This year's IACFS/ME conference is in July. More here: https://www.iacfsme.org/2022-conference-main-page/ I would start a new thread, but it is not clear yet if this is going to be streamed and that we can therefore participate in the conference somewhat. I suspect not.