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Well, yes, these are very real problems. That is not my concern. You have to factor in who is doing the planning and implementation, whether they are actually genuine about this, and what the tactics they use will be. What happens if they decide that patients like us just need a firm...

Good to see this possibility being explored.

I think that view is a little uncharitable, @Jonathan Edwards. Overall I think it is a reasonable piece, and a bit more of this kind of stuff might help open the eyes of a few clinicians, and give them some pause for thought in their daily clinical practice. Not everybody in the profession is a...

And then parents will be accused of being over vigilant, and causing psychosomatic disorders, or worse.

This is going to end very badly for US patients.

I hope so. I have no doubt that all this drivel will eventually collapse under the weight of it's own inconsistency, vacuity, cruelty, and sheer lack of practical meaningful results. Problem is how long it will take and the human cost. Try to make the most of your circumstances? No argument...

This prospective study highlights the contribution of emotional dysregulation to both the severity and course of somatic symptoms in SSD. The findings emphasize the relevance of sex differences and emotion-focused mechanisms in symptom maintenance and improvement, supporting the need for...

Bastards. :mad: They really do think they own us, and we have no right to object to what they do with our lives.

...the absence of several investigated pathophysiological mechanisms. Symptoms may be attributable to other factors (i.e., psychological/neurological) that were not investigated. Or they may be attributable to pathophysiological mechanisms you did not investigate.

And I will say again: The PACE trial evaluated negotiated GET. It was not FORCED fixed increments. And yet even with this soft version they were still unable to deliver an unambiguous, clinically meaningful result. GET must be used in combination with a change in belief in what the symptoms...

Yes, be careful what you wish for. Something is not necessarily better than nothing. Depends on what that something is.

Do we know that?

The findings highlight the potentially important role of psychological flexibility in mitigating symptom severity and enhancing work engagement among individuals with chronic fatigue syndrome. It does no such thing. You have not established causation.

Because the government is ashamed of it. They are giving every indication that they want it to quietly disappear down a deep dark hole, as fast as possible. Suggests strongly that they know it is a massive fudge and failure, and that any name associated with it will be covered in merde. My...

Yes, somebody is doing well out of our suffering. I sit on a man's back, choking him, and making him carry me, and yet assure myself and others that I am very sorry for him and wish to ease his lot by any means possible, except getting off his back. Leo Tolstoy – Writings on Civil...

Repurposing drugs, at this stage, lacks the necessary rationale to choose which drugs to test. Though DECODE might provide some. Also agree that most patients do not need any specific 'treatment' or management advice, beyond a few basics. Sort of thing that could easily fit on a page or two...

How can a 'treatment' that delivers no practical benefit be cost effective?

Yeah, that's what we need. More mental health/psychosomatics/functional disorders. Just hasn't been enough of it. Interesting that it is the only thing they specifically mention we need more of. Nothing else.

I cannot save the first two of those Google drive files to my desktop (as a PDF), they are only readable online, but the third one (the position statement) can be saved. Anybody know why? The first one in particular is a useful resource.

Maybe we need to get a patient produced and run monitoring system in place, looking at both compliance with NICE and harms reporting, that is completely independent of any official system.