In the abstract it sounds good. But the devil, as we have learned the very hard way, is in the detail.
What kind of services? Run by? Based on what 'models'? Etc.
My view is that health care workers/researchers should get the same treatment from the system that non-HCW patients get.
Might sound harsh, but I can't think of a better way to wake them up to how bad and desperate is the situation for us.
Don't enjoy saying that, I wish it were not so. But if...
Exactly the sort of stuff that needs a lot more attention by researchers, IMHO.
I think there is a whole zoo of basic sensory-motor-cognitive clues hiding in plain sight, just waiting to to be objectively measured, and which they can be with current technology and understanding.
6MWT, SF-12 physical and mental components increased,
But the only objective test used (6MWT, and relegated to a secondary measure) showed no benefit for key result of group difference (p = 0.34). Which is the standard pattern for these kind of studies.
They did acknowledge they did no...
Psychological framing refers to attributing symptoms solely to psychological causes.
Or to any inappropriate degree, really. It is about false attributions, primary or secondary, major or minor. It never ends well and simply should not happen.
I think Garner genuinely believes in what he is saying, which is the real problem.
If you have to choose between dealing with a crook or a believer, choose the crook. At least they know that when the game is up they need to bargain realistically to cut their losses. Unfortunately believers will...
Above all, the goal is for patients to receive a clear diagnosis so they can receive appropriate treatment.
What treatment?
We barely have any ideas for even the most basic and modest management, let alone any proven active (and safe) treatment.
Not entirely.
As primary causal factors, they have no demonstrated role, despite endless and often quite dishonest attempt to portray them as having.
But as secondary exacerbating factors, they are definitely a thing. Meaning misdiagnosis, mistreatment, and the poverty and despair, etc, etc...
Conclusion
Inspiratory muscle training improved cardiorespiratory outcomes, while multicomponent physical training improved muscle strength, physical functioning, and fatigue. Both types of training improve physical functioning. The certainty of evidence for the outcomes evaluated was low.
So...
And in a very nasty cruel dishonest and cowardly way.
Above all else this stuff is just utter cowardice in the face of appalling truths, especially about themselves.
Which, incidentally, is ultimately why I have no respect for them whatsoever and am so hard on them. They deserve it. Moral...
The ME/CFS service team consists of a wide range of skilled staff, including consultant clinical psychologists, assistant psychologists, specialist occupational therapists, and rehabilitation staff.
Which is the problem.
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