Search results

In fairness, you only posted that a week ago, and it is a very complex and weighty problem to address, that is never going to be easy nor quick to deal with. You are free to lead from the front on this.

Especially when those patients are informed, cogent, and have no incentive to compromise for the sake of career prospects, etc.

NICE 2021, and everything else, may well have not happened for all the difference it is making in the NHS. They just don't care, and are clearly going to hand us straight back to the psychosomatic club. It could not be more obvious. :grumpy:

Despite there being not a shred of hard evidence for any of it. :grumpy:

Multidisciplinary interventions, such as graduated exercise therapy with the Modified CHOP POTS protocol,11 incorporating pacing after energy expenditures, cognitive behavioral therapy, and neuromodulation, alongside dietary and nutraceutical interventions, have all shown promise in managing...

They are still playing the underdog card, I see. And it started so promisingly too. This is obviously the latest tactic. Sound so sympathetic and understanding about the patient's dilemma and medical trauma, then hit them with the same old toxic shit they have always foisted upon us. Sorry...

As Susan Sontag said (in Illness as Metaphor): Theories that diseases are caused by mental states and can be cured by willpower are always an index of how much is not understood about the physical terrain of a disease. Maybe do a video styled after the one by Chalder and Gerrada, but telling...

Not successfully, if the likes of Sir Simon have any influence over the outcome.

Endlessly. Repetition being one of the critical components of successful propaganda.

Possibly also that they want confirmed persistent cases, which might help weed out ME/CFS misdiagnoses that were actually other conditions that resolved in the short-med term?

Thanks for this. :thumbsup:

I am guessing that should be minority.

Oops, missed that bit. :oops:

There is evidence of perturbed microbial and host processes in the gastrointestinal tract of individuals with functional gastrointestinal disorders (FGID) compared to healthy controls. So when you will stop calling them functional disorders?

Lack of support leads to poorer health and increased social costs. So start offering meaningful support (including long-term research funding), not this infantilising psycho-behavioural fluff that could be written on a single page in large font and posted to every citizen for virtually no cost.

That is appalling. Besides being wrong overall, it places the responsibility for success and blame for failure right back on the patient. They are never going to give up their rehab and recovery framing, nor take any blame for it not working. Mostly by getting out of the way. Don't rule out...

Yep. Some brains cannot comprehend the critical difference between PEDE, paed, and pedo.

For me it is mainly lack of capacity to engage (beyond S4ME, and even that is increasingly limited), and severe lack of funds to otherwise support others' work. I do donate a bit, but after 40 years of well below poverty line income there just is not much to spare. Indeed, now I am entering old...

Children should not be experimented on until the treatment has been proved both genuinely safe and effective in adults. Especially vague dodgy psycho-behavioural treatments with shitty track records. So, a flat no from me. (Option 3B)

This is one of the best and most important posts on this whole forum, and it needs to be spread far and wide. Thank you, @Trish. :hug: What they said. And especially this: