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Oh well he will surely have a list of stats on deaths in the last 100 years, a list of these chemicals causing the poisoning and the year they became introduced and where, and associated deaths, he wouldn’t just be positing it with no research. I’m sure he has a list of the poisonous elements...

History is full of examples of women who were bedbound for years, from St Julie Billiart to Florence Nightingale

I’d want to see scientific stats to support his assertions… Anyone can come up with a theory on twitter

This just in: questionnaires not reliable - Chalder yet to give comment!

Kickstarting the field that should have been studied Been held back due to bias Strongly female Research should be done as fast as possible Such a common disease, hugely stigmatised, hugely misunderstood Important thing is not opinion it’s evidence Thee is evidence There is a genetic...

Chris said “brief notes of bbc Scotland news at 7.05pm” 8 places in genomes that predispose ppl to getting a diagnosis of ME

He’s on in a minute if you want to search it live on BBC now

It’s not the best delivery, but actually it’s nice to see someone really speaking their truth and not pussyfooting around. The frustration is clear, the “ok but what even is it” comes across. I don’t know if that was Oonagh’s intention, but it’s refreshing. She’s the first person talking about...

Oh wow amazing info, thanks so much for posting!

I think the sense of time warps with ME, a day is really nothing and I can’t achieve everything I used to, or would like to. Spread over a week or month is more achievable. I like to go shopping so if I accept I can’t manage it every week, but I can every month, it takes a bit of that sense of...

But that would be a lot more work to gather their addresses, ask about adding and then get the media person at Decode add them to whichever database is dealing with media in the next 24hrs (and across time zones)

I think either way there will be a “time before” the results and then the time after.

The argument would be that there are significant concerns the child is being abused, and must be removed from the parent. This would need to be argued to a judge to make an order for removal. The problem is that the “state” cannot provide the sort of care a child with ME needs, and the child is...

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This is why they have to change PIP. They say it’s because there are webpages telling people what to write to win a claim, and that’s partly true. Not because people are cheats, because people share experience on what to say and how to say it so your evidence isn’t disregarded!

I think I’m going to say it in every response at my next tribunal

Thresholds. You know like you pace so you don’t “overdo it” well we no longer need sessions with an OT telling us we’ve been overdoing things if we’re tired (silly us!) or reams of rehashed “how to pace” guides. The whole thing has been automated for us, giving a second by second account of how...

I have the new band which lasts a week on a charge. I agree the hrv daily score thing isn’t great, plus it’s being used now as some kind of authority on predicting crashes? It still pays for itself for me when I can whip it out to show exertion in real time.

I like having it, it’s a bit of a comfort blanket now. I’m looking forward to them rolling out the sleep monitoring. I’m still using Fitbit for that at the moment and I’d like to not have to buy a new one when its time is up.

A post on Reddit says that legal representation has been secured for the family.