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  1. MrMagoo

    BioPsychoSocial back in Disability Benefits Policy - Keep Britain Working Report

    When I worked, in an office they wouldn’t let me have a phased return or a work from home day, so I don’t have much confidence in “barriers being removed”.
  2. MrMagoo

    Independent: Father attempted suicide and family almost lost home after GP missed common genetic condition for six years

    Yup, that’s me. Peter White Pooh-poohing GP’s diagnosing ME and giving people an alternative diagnosis of depression, fibromyalgia etc should not, in my opinion, be cited as evidence of anything other than Peter White’s incompetence. Obviously in my case he was wrong, how many others? My GP...
  3. MrMagoo

    Independent: Father attempted suicide and family almost lost home after GP missed common genetic condition for six years

    The link doesn’t work. Is this the White study that I’m in where he said I was wrongly diagnosed with ME except he was wrong, I do have ME. That study seemed to be Peter White blowing his own trumpet and telling 40% of referrals to his clinic that they didn’t have ME they were depressed or had...
  4. MrMagoo

    BioPsychoSocial back in Disability Benefits Policy - Keep Britain Working Report

    We know they are looking at letting you “try” work for a period without losing benefits. However, you can do some work on benefits and have your benefits reduced/wage taken into account (say if you were part-time). My concern is more that (like PIP) if you’re moderate or mild you will just be...
  5. MrMagoo

    Apps used by NHS clinics for ME/CFS and Long Covid

    In fairness, it was the same trust but different clinic who Pooh poohed Visible,that was the ME (Infectious Diseases) service. IDK where LC has been yeeted to.
  6. MrMagoo

    BioPsychoSocial back in Disability Benefits Policy - Keep Britain Working Report

    There might be a bit of an issue with the NHS and/or Social Care not doing what you’d expect, hence lots of “removing barriers to work” whilst glossing over the “how am I supposed to function, eat, wash and dress” part.
  7. MrMagoo

    BioPsychoSocial back in Disability Benefits Policy - Keep Britain Working Report

    It’s the spin which is galling “disabled people want to work and are being shut out” well that will be true for some. As I cited earlier, the biggest offender regarding Disability Discrimination EmploymentTribunal cases is ….the DWP. So maybe Charlie can have a word with them for starters…
  8. MrMagoo

    BioPsychoSocial back in Disability Benefits Policy - Keep Britain Working Report

    To be devils advocate, he was describing the medical model and telling people (possibly wrongly) that the medicine treats the disability or something. I think what he was trying to describe was a very basic type of physical disability I.e. if you’ve no legs then you get a wheelchair=problem...
  9. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I received my £150 winter fuel letter this weekend!
  10. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    This was one of them https://assets.publishing.service.gov.uk/media/6762b502ff2c870561bde779/UA-2024-001023-PIP.pdf I use this site https://pipinfo.net/ NB this might be overwhelming if you’re not familiar with the law or PIP, for me I worked in court and had a little bit of experience, I...
  11. MrMagoo

    Ozempic, tirzepatide and other GLP-1RAs - impact on ME/CFS

    I assume that there should be “some” continuing effect because both contain a GLP-1 receptor agonist. Wegovy was always the slower losses/less losses overall when compared in trials though.
  12. MrMagoo

    Ozempic, tirzepatide and other GLP-1RAs - impact on ME/CFS

    Very soon I’ll be evaluating the difference between Mounjaro and Wegovy / tirzepatide and ozempic
  13. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I do the same but I do it ahead of time, then still need extra time! They don’t have to give actual reasons for their decisions though. I literally cited case law last time.
  14. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Honestly just tell them you’re unwell and need an extension, I always do that, it’s fine. If anything it should help!
  15. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Advice here https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/help-with-your-claim/fill-in-form-pip/3-prepare-and-cook-meal/ I would say you should do a lot of research and join Benefits&Work if you can afford the £20, PIP is a different language to English and...
  16. MrMagoo

    Should we initiate development of a new, short questionnaire to identify PEM (to aid diagnosis)?

    Can Ijust say that I’m in the Peter White study as someone who didn’t have ME, according to Peter White who cited Oxford Criteria. However, numerous other specialists disagree, citing evidence of PEM in Peter’s notes of his assessment of me. Also my dna was used in DecodeME. What I’m saying is...
  17. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I see that successful PIP claims and appeals are dramatically down, according to benefits and work. I maintain my suspicions of “secret” rules behind the scenes. Whilst I have not been assessed, at my tribunals it’s very clearly an exercise in “how to disregard” certain evidences. All of my...
  18. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I think they slightly changed the category names as well
  19. MrMagoo

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    I’d be looking for something in his life that he wanted but couldn’t achieve and turning it back on him!
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