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Every Reddit thread we looked at on this forum going back years has been like this. This is because the view that ME/CFS is a functional disorder is the prevailing paradigm they are taught. Most doctors adhere to this view, it’s just that most of them are too smart to post their views on social...

Because when they get better they might realise they have memory loss and sue the consultant saying they were too sick to understand what they were agreeing to.

Unfortunately in the UK 90% of patients are still getting bilateral ECT for reasons that are unclear to me. This is not the case in many other countries. I'm guessing it's because no ECT research is being done in the UK and none of the work done abroad has penetrated NHS practice because NHS...

Capacity assessment for ECT has nothing to do with whether you want or don't want the treatment. Some patients are quite placid and agreeable to go along with whatever is being suggested but are deemed not to have capacity because they can't understand the complex information regarding risks and...

Huh? There were several prominent cases with a fatal outcome from 20+ years ago. None of this is new. The only thing that’s new is that families are utilising social media to push back against BPS witchcraft in NHS hospitals instead of suffering in silence.

That comment about patient selection really annoyed me. The whole point is that the treatments worked for nobody (recovery rate approx 5%).

This case had a fatal outcome. If people are too sick to attend in person they could have been asked to give evidence from home via Teams.

Is the GP still practising medicine?

The improvement in quality of their fur is amazing.

This study is a step in the right direction, though none of the areas under the curve are clinically useful as too many patients are misclassified.

SND.

To my knowledge, no one knows how/if it’s relevant to ME/CFS fatigue.

I do think adrenaline is involved in these events because I get similar symptoms due to sensitivity to dental local anaesthesia which contains it. There was an old thread many years ago of others saying the same thing on the previous forum.

Thanks to everyone involved in this important project. I’m sure they’ve been reading this thread so the arguments will probably come as no surprise. It will be interesting to see what they come up with. I hope it’s an actual response and not more of the same “you should be grateful and stop...

Yep. It makes me cringe every time I see it spelled out. When people in real life ask me what POTS is, I always just say postural tachycardia syndrome because the other name is tautological.

Because they don't believe that severe ME/CFS can result in gastroparesis. They are taught in medical schools and on the wards by their consultants that ME/CFS = all bodily systems are operating normally. So a mild case is imagining mild pain and a severe case is imagining severe pain, but it's...

I don’t have any experience of pregnancy but I will say nausea is a major ME/CFS symptom for me triggered by exertion. Very embarrassing in public especially. This thread is horrifying overall. Without even reading the original article I just knew some BPSer was going to say that it’s all due...

Frontiers type journals are major purveyors of this sort of “research”. I don’t read anything that comes out of such journals because the signal to noise ratio just isn’t worth it. So much quackery out there. The only real immunological finding that I know of in ME/CFS is TGF beta and that’s not...

They are willing to provide nutritional support for other conditions with unknown cause and widely believed to be "psychological" like anorexia and depression (the severe end). So why not us? What does lack of evidence on aetiology have to do with letting your patient die?

Huge if true.