Search results

Speaking as someone who has had so-called POTS for 20+ years, it’s important to be cautious with the medical advice out there given out by patient orgs and celebrity doctors. I’m not going to name the org but about 10 years ago they admitted on their Facebook page that a study found no effect of...

No one can articulate it clearly. It usually boils down to there being two broad types of brain rot: focal signs go to neurology and the rest gets carted off to psychiatry.

This is a great question, one that I’ve also grappled with. All of the main psychiatric conditions listed in the DSM (MDD, BPAD, schizophrenia, autism, various dementias etc.) are heritable, including the ones you wouldn’t necessarily expect based on folk beliefs/misunderstanding of the world...

Maybe they ran a more conventional analysis like linear mixed effect model and didn’t get the desired result.

I feel like they are reading this and directing this at us.

Overstating the biological evidence does us more harm than good. If you brought n=17 studies like the Nath one to a UK consultant they would laugh. The unfortunate reality is that the is NO replicated evidence of biological mechanism. If there were, we wouldn't be dying of malnutrition in NHS...

This happened to me where ART worsened my muscle deconditioning. However, after just a few weeks of doing my usual small amount of physical activity again, I reconditioned myself to the point of my "normal" ME/CFS state. Then I hit a wall where further exertion only made things worse again. I...

It's both constant and exacerbated during PEM.

Some years ago I did aggressive rest therapy for a couple of years where I did basically nothing, had no PEM and didn’t even leave the house. It made zero difference. I don’t think you can rest your way out of ME/CFS just as you cannot exercise your way out of it.

Come on man.

I've seen the attitude you refer to and it's very dangerous. You will still have ME/CFS afterwards, only without a house/car.

No resources are better than some resources in this situation IMO. The "long sepsis clinics" would just be handing out the same harmful rehabilitation advice that they give us and LC people.

Not surprising. There was a study floating around twitter recently on 20-year follow-up after Long SARS. Out of 50 patients in that study, no one had returned to their premorbid level of activity. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9914492/

One way to avoid having to follow the 2021 NICE guidance on ME/CFS is to diagnose new people who come through the door with FND instead. Problem solved, ME/CFS disappeared.

They should have been doing postmortem examinations of brains and other tissues since the 1980s clusters. Better late than never I guess.

Same here. It's a reliable indicator of what the rest of the day is going to be like.

More women get ECT for the simple reason that more women get depression than men. It’s a 60:40 split. There’s no conspiracy. The activists are trying to spin this into some women’s rights issue.

300 ECT sessions is far beyond the normal standard of care. I don’t know what NZ was like in 1994 but in 2024 Europe MRI is done routinely. The article also mentioned that the surgery for the benign cyst caused a stroke. The fake expert quoted at length is a known psychologist and ideological...

Hopefully these findings are not an artefact of obesity and low physical activity levels often seen in FM.

Machine learning with n=26 will result in an overfitted model that likely won’t replicate elsewhere.