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  1. Sean

    Review Quality of Life With Ehlers-Danlos Syndrome/Joint Hypermobility Syndrome: A Systematic Review of Psychosocial Interventions 2025 Bohling-Davis et al

    Conclusions Findings from this review indicate the potential of mindfulness and CBT How many years and studies has it taken to get to this non-conclusion?
  2. Sean

    Risk factors for fatigue severity in PASC: A prospective controlled cohort study of nonhospitalised adolescents and young adults, 2025, Selvakumar MD

    Variables with significant (p <0.2) associations to the outcome That is not what I understand to be the threshold for (statistically) significant. About the purported aims of the study? Very little. About the competence and integrity of the authors of the study? Possibly quite a bit.
  3. Sean

    CDC and #MEAction: ME/CFS Resources for Medical Students - Flashcards

    It is not a bad question, and is heading in the right direction. But, as @Utsikt says, it still has quite a way to go to being safe and accurate.
  4. Sean

    Opinion Abolish the Tilt Table Test for the Workup of Syncope! 2020, Kulkarni et al

    That was my first thought. They are are measuring the wrong variables, not that the test itself is bogus.
  5. Sean

    United Kingdom: News from #There for ME

    Yes, seems prudent to hold off demanding funding until we see what it will be paying for.
  6. Sean

    Post-Hospitalisation COVID-19 Rehabilitation (PHOSP-R): A randomised controlled trial of exercise-based rehabilitation, 2025, Daynes et al

    And that non-result was after 8 weeks of intervention. They got nothing. Another rehab study fails to deliver any meaningful benefit. Credit to them for using an objective primary outcome measure.
  7. Sean

    « Exercise Actually Makes Chronic Fatigue Syndrome Worse» - Video by SciShow

    Broadly it is quite good, basically on the right path. But quite a few details are problematic. It is a major channel, so that is helpful in spreading a more realistic story about ME/CFS.
  8. Sean

    Identifying and mitigating the public health consequences of meta-ignorance about "Long COVID" risks, 2025, Motta et al.

    Somebody should send the authors a link to that appalling Reddit Medicine thread that was posted a couple of days back. I mean, if they are looking for the primary source of ignorance and the Dunning-Kruger effect among the general population on LC (and ME/CFS), and also for the first place to...
  9. Sean

    The relationship between the phenotype of long COVID symptoms and one-year psychosocial outcomes: an exploratory clustering analysis 2025 Nakamura+

    Which is why the BPS club have been concentrating more on 'perpetuating' factors. Almost any post-onset features (real or imagined) can be spun as contributing to perpetuating health problems.
  10. Sean

    Feeding intolerance in adolescents with disorders of gut–brain interaction 2025 Person et al

    the exact etiopathogenesis and pathophysiology of FI in DGBI remain unclear. So why such definitive "gut-brain" framing and therapeutic recommendations? This is just marketing fluff for the psycho-behavioural rehab industry.
  11. Sean

    Profiling hypermobile Ehlers-Danlos syndrome (hEDS): factors in health and wellbeing with chronic conditions and... 2025 Foster et al

    «There are no known treatments. Lets make them stop acting sick, that will make them us feel better.»
  12. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    Doctors like to consider themselves some of the biggest smartest toughest truth tellers in this world. And in fairness they often do have to deal with and tell patients some pretty harsh truths. But they also squeal and whine louder than anybody when they get told some hard truths about...
  13. Sean

    United Kingdom: Science Media Centre (including Fiona Fox)

    Should a Science Media Centre even exist?
  14. Sean

    Mind and Body in the Guardian again

    Correct. The power of mind over matter is the most potent and seductive myth of them all.
  15. Sean

    Mind and Body in the Guardian again

    If you silly lowly patients insist on continuing to be sick, and have a crap life, after we experts have told what is wrong and how to fix it, then it is your fault. When you abandon methodological rigour and falsification, the world is your oyster!
  16. Sean

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    I am taking bets on how long before attendance at JFK Jr's proposed wellness centres becomes compulsory for chronically disabled and sick, and how those attending will be put to (unpaid) work for private corporations as part of the, um, re-education process. This is not going to end well. Don't...
  17. Sean

    Review Exploring rest advice in fatigue interventions in rehabilitation among adults with long-term conditions:... 2025 Hettinga et al

    standardisation of rest in fatigue interventions People should rest when they need to. Nothing more, nothing less. This obsession with 'standardising' everything is half the damn problem.
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