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  1. forestglip

    Affective and chronic fatigue symptoms are associated with serum neuronal damage markers in Parkinson’s disease, 2025, Al-Hakeim et al

    Affective and chronic fatigue symptoms are associated with serum neuronal damage markers in Parkinson’s disease Hussein Kadhem Al-Hakeim, Hayder Naji Khudhair, Sayed-Omid Ranaei-Siadat, Fataneh Fatemi, Fateme Mirzajani , Mengqi Niu & Michael Maes [Line breaks added] Abstract Parkinson’s...
  2. forestglip

    Comparing DNA Methylation Landscapes in Peripheral Blood from [ME/CFS] and Long COVID Patients, 2025, Peppercorn et al

    I put the results section from the preprint and the final paper in a diff checker (left hand side is preprint): https://www.diffchecker.com/lt6Xaxmg/ They didn't add anything there that makes it clearer that the chart is basically meaningless.
  3. forestglip

    Does anyone else get a runny nose, sneezing, coughing etc during PEM?

    Probably, but I can only definitely say that's the case (really bad PEM plus sore throat and runny nose) for the time it happened a few days ago. I didn't think to track it in detail previously.
  4. forestglip

    Does anyone else get a runny nose, sneezing, coughing etc during PEM?

    Only when I really overdid it, but yes, sore throat and runny nose.
  5. forestglip

    Closed 2022 Pilot study in Norway - Daratumumab in ME/CFS

    Thread for discussion of paper: Plasma cell targeting with the anti-CD38 antibody daratumumab in ME/CFS -a clinical pilot study, 2025, Fluge et al
  6. forestglip

    SMPDL3B a novel biomarker and therapeutic target in myalgic encephalomyelitis, 2025, Moreau, Fluge, Mella et al

    Alain Moreau responded to an email: Corrected legend: Edit: Note that I think he meant Supplementary Table S3. It has most of the items from the original legend, but not all, though.
  7. forestglip

    USA: Center for Solutions for ME/CFS - news and updates from Columbia University's NIH funded center, Lipkin

    Health Rising: 'The Best of Times, The Worst of Times: Ian Lipkin Talks on ME/CFS' Includes an interview with Ian Lipkin:
  8. forestglip

    SMPDL3B a novel biomarker and therapeutic target in myalgic encephalomyelitis, 2025, Moreau, Fluge, Mella et al

    It seems like some charts are missing from figure 2. The caption talks about fig 2a through 2n, but I only see 2a through 2g. And 2b through 2g in the image seem to correspond to 2i through 2n in the caption, with 2b through 2h missing.
  9. forestglip

    SMPDL3B a novel biomarker and therapeutic target in myalgic encephalomyelitis, 2025, Moreau, Fluge, Mella et al

    Interesting that they never refer to it as ME/CFS. Only ME, with a note that it's also known as CFS.
  10. forestglip

    What resources exist worldwide that hold genetic data on people with ME/CFS?

    This might be the thread you're thinking of. Also, this website discusses the difference. Basically, GWAS looks only at the most common variants, so it could miss a lot. WGS looks at the whole genome, and also looks at different types of mutations that a GWAS doesn't.
  11. forestglip

    What resources exist worldwide that hold genetic data on people with ME/CFS?

    I think maybe it was a GWAS to start with, and they decided to do the whole genome recently. This protocol for RECOVER from 2022 says a GWAS will be a part of it.
  12. forestglip

    What resources exist worldwide that hold genetic data on people with ME/CFS?

    I don't think I've heard anything since they announced they were doing WGS in January.
  13. forestglip

    What resources exist worldwide that hold genetic data on people with ME/CFS?

    RECOVER was planning on doing whole genome sequencing for long COVID. I would assume they asked participants questions about having ME/CFS.
  14. forestglip

    CoRE: Long Covid, Lyme and related conditions clinic at Mt Sinai hospital

    Thanks for sharing @DHagen. That's wild. Are they not responding at all, or just not answering what dosage to take?
  15. forestglip

    Priced out: Some Long COVID and ME specialists charge high prices for concierge care, The Sick Times

    Probably good for business that many people recover from long COVID naturally after a few months. If they happened to be seeing one of these doctors at the time, it'd be easy to mistakenly connect recovery with one of their treatments and then spread the word.
  16. forestglip

    Priced out: Some Long COVID and ME specialists charge high prices for concierge care, The Sick Times

    Holy cow. On first read, I thought those were fees a doctor paid to be allowed to practice in and get patients from this health network. Who can afford that?? Here are Dr. Ruhoy's fees. For the most value per dollar: $8500/month to get 2 hours of time with her per month, 45 minutes with a...
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