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  1. Sean

    Mind and Body in the Guardian again

    Correct. The power of mind over matter is the most potent and seductive myth of them all.
  2. Sean

    Mind and Body in the Guardian again

    If you silly lowly patients insist on continuing to be sick, and have a crap life, after we experts have told what is wrong and how to fix it, then it is your fault. When you abandon methodological rigour and falsification, the world is your oyster!
  3. Sean

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    I am taking bets on how long before attendance at JFK Jr's proposed wellness centres becomes compulsory for chronically disabled and sick, and how those attending will be put to (unpaid) work for private corporations as part of the, um, re-education process. This is not going to end well. Don't...
  4. Sean

    Review Exploring rest advice in fatigue interventions in rehabilitation among adults with long-term conditions:... 2025 Hettinga et al

    standardisation of rest in fatigue interventions People should rest when they need to. Nothing more, nothing less. This obsession with 'standardising' everything is half the damn problem.
  5. Sean

    Managing Energy, and Shaping Care: Insights from Adults with [ME/CFS] Through Co-Production Workshops, 2025, Thornton+

    Point taken. OTOH, it is the responsibility of the pros to do robust assessments. I don't take what patients say at face value either. I have learned the hard way how easily we all can fool ourselves. Me included.
  6. Sean

    Psychology Today: In Search of a Coherent Understanding of ME/CFS and Long Covid, Jake Hollis

    No fundamental difference to this, IMHO: https://en.wikipedia.org/wiki/The_Secret_(Byrne_book) Sold over 30 million copies, more than $300 million in sales, and also made into two films. The only reason this toxic drivel fantasy persists throughout the ages is because enough people – and a...
  7. Sean

    Associations Between Self-Rated Health and Mortality in the Norwegian Women and Cancer (NOWAC) Study,2025, Killie et al

    Of course a bajillion years of evolution has prepared us for the early intuitive, less overt and specific, warning signs of approaching health trouble. It is bizarre to me that anybody would think otherwise, and devote their time to boldly declaring these alerts to be both a false foreboding...
  8. Sean

    Managing Energy, and Shaping Care: Insights from Adults with [ME/CFS] Through Co-Production Workshops, 2025, Thornton+

    A recent systematic review highlighted significant shortcomings in activity pacing interventions for ME/CFS, noting that they lacked rigour, were brief, and did not follow guidelines or integrate recommended technology, limiting their relevance for modern energy management. And then proceeds to...
  9. Sean

    Psychology Today: In Search of a Coherent Understanding of ME/CFS and Long Covid, Jake Hollis

    A fairy tale. The Narrative Rules All. An entire profession, even. (With some honourable exceptions.)
  10. Sean

    Review Selective outcome reporting in trials of behavioural health interventions in health psychology & behavioural medicine journals, 2025, Matvienko-Sikar

    Wessely. https://www.nationalelfservice.net/other-health-conditions/chronic-fatigue-syndrome/the-pace-trial-for-chronic-fatigue-syndrome-choppy-seas-but-a-prosperous-voyage/ In an email exchange with Julie Rehmeyer, in 2016, he also said this: Simon Wessely, president of the UK Royal College...
  11. Sean

    Assessment of psychosocial aspects in adults in post-COVID-19 condition: the EURONET-SOMA recommendations (...), 2025, Salzmann, Fink et al

    It is becoming so. ME/CFS was just the trial run for them to test out how far they could get away with it. Turns out it was quite a long way, and is ongoing.
  12. Sean

    BACME position paper on the management of ME/CFS, 2020, updated 2022 - discussion thread

    Well said, @Nightsong. They are utterly disingenuous and self-serving, from start to finish.
  13. Sean

    Review Chronic pain, fibromyalgia, and long COVID, 2025, Braun

    There is a growing scientific controversy And people like you are going to make damn sure there is.
  14. Sean

    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    Yes, they just elide straight over that critical bit, making sure to never examine the possibility that patients' reluctance to push through PEM is completely justified. IOW, that patients are actually interpreting the somatic signals from their bodies correctly. As they have been doing for...
  15. Sean

    News from Scandinavia

    And as an excuse to not look for any.
  16. Sean

    United Kingdom: News from #There for ME

    Yes, patients need to be a lot more careful about we wish for. Something is not always better than nothing.
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