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There is a mutation that is prominent in Europe. But whether or not it is more contagious or less fatal has to be derived from the epidemiology, which is confounded by the shift in behaviour of vulnerable people, so I am not sure anyone really knows. You would have to infect two populations with...

Dear @saltcaramel, You say that the category 3 is common. Yet I never came across more than two people in my entire career as a rheumatologist who might begin to fit this description. And as a rheumatologist I was the obvious person for someone with widespread joint pain to go to. I met a child...

All you need is for people with a tendency to severe lipoedema to be more likely to be hyper mobile. Some of those people, as yet at a mild stage, will show up in the number of hyper mobiles in the mild group but a higher proportion will show up in the severe group. Even if everyone got stiffer...

I am not sure she is implying that hypermobility increases over time, but rather that it is more likely to be found in those who have severe adipose tissue problems. Genetic hypermobility does not increase as a rule - people get stiffer. I found her account very unconvincing because she has no...

I don't think I am the best person to do this sort of job but I would be happy to offer anyone doing it with rapid turn around technical comment on a regular basis.

I have experienced 5 major #longcovid relapses in 3 mo. This video explains why: HR>110, into anaerobic threshold. Why isn't this information more widely disseminated? WE NEED GUIDANCE NOW. Stop pussy-footing. Draw on ME/CFS research and experience. Garner says he is a founding member of...

I don't see much change in the mindset. Firstly there is still an assumption that somehow this guy is still the expert - having 'learned it's about storing energy' somehow. What energy is he talking about? Certainly not ATP. Secondly, the rest today is so that you can do MORE TOMORROW. Why...

Yes, that is pacing. I doubt his is.

I agree that there has been progress in that people like this have to change what they say. Whether they change what they think or do is another matter. At least they are on the back foot, even if they like to pretend they are dancing out front.

Is anyone coming round to it. Isn't his 'Pacing' just doing the exercise more gently when there should be no mention of exercise at all until there is some evidence.

I fully understand people's desire for EDS to be taken seriously and to have a diagnosis. However, having watched the relevant part of the programme it seems that there was no diagnostic test. The diagnosis was made on the basis of a collection of rather general symptoms much in the way that...

I have not seen the programme. Did the patient have genetic evidence of EDS?

The odd thing is that it seems that Dr O'Leary is saying the ME is CFS. For her, CFS is defined as a false belief that you are ill (maybe with ME) when you reconditioned. But this in itself is a false belief by psychiatrists. So CFS is a false belief by a psychiatrist that a patient has a...

While CFS is a condition we can hope to resolve with holistic virus recovery strategies,ME/CFS is a chronic disease in its own right, one that requires its own treatments and research that will help develop them. In this sense ME/CFS is similar to autoimmune disease triggered by acute infection...

I think you are talking about the members of the medical profession you are likely to meet if you consult with someone most places. I am talking about physicians and researchers with a specific interest in ME/CFS as a clinical scientific problem. And I am not talking about people who are...

I have looked at the literature. The problem here is whether any of it is based on reliable evidence. Are there any properly controlled trials for instance? I am glad that you are continuing to engage @mari sterling but could you help me with my specific queries about why traction or surgery...

That looks suspiciously like a self-fulfilling study.

Physicians and researcher worldwide have agreed to use ME/CFS, I think for the following reasons: 1. Neither term is very good and patients prefer ME. 2. ME is not used on its own to avoid two misinterpretations. 3. We want to avoid people thinking we mean ME in Wessely's sense that 'ME is just...

Yep, he who laughs last laughs longest - looks like @Barry in this case.

Of course I meant Moss-Morris. But you know that. I was thinking of her video on Body Psychotherapy. I wonder if they are worried that knowing 'what to say' and 'what not to say' we can now make them all redundant and have a robot that says: "Really? Oh how awful!' 'You poor soul' "You should...