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  1. Sean

    Psychological factors: the defining features of quality of life in disorders of gut-brain interaction - a comparative exploratory analysis 2025 Groen+

    What they said : Although causality between psychological factors and HrQoL cannot be ascertained, our findings underscore the importance of holistic DGBI-management that extends beyond symptom-control to encompass the full spectrum of patient-experience. What they should have said: As...
  2. Sean

    Safety and Physical Outcomes of a Novel Australian Multidisciplinary Long COVID Clinic That Incorporates Exercise, 2025, Buettikofer+

    This is consistent with emerging international evidence, with a recent systematic review of 8 randomised controlled trials [15] finding that exercise therapy in Long COVID populations is safe and not associated with adverse events. Between the appalling dropout rate, and the failure rate to...
  3. Sean

    Hypothesis Hypothesis: A Mechanical Basis: Brainstem Dysfunction as a Potential Etiology of ME/CFS and Long COVID, 2025, Jeff Wood, Kaufman et al.

    If I lie on my back with a pillow under my head, after maybe half an hour I get neuralgia (term? the arm equivalent of sciatica) in the left forearm and hand severe enough to prevent sleep, and quickly becoming intolerable if not relieved. Take away the pillow, or change to lying on my side...
  4. Sean

    The ME Association Clinical Assessment Toolkit (ME-CAT) and app (autonom-e)

    i. the development and psychometric evaluation of the toolkit assessments, Phase I successfully co-produced psychometrically robust tools with patients and clinicians. There it is. This has nothing to do with any benefit for us. By funding this phase, this enables the MEA-CAT to move from...
  5. Sean

    Well-known, famous people with ME/CFS (public thread)

    Rutter wrote some nice short choir pieces. I wish him the best.
  6. Sean

    Recovery from chronic fatigue syndrome: a reflexive thematic analysis of experiences of people before, during and after treatment, 2025, Chalder+

    Far as I'm concerned it ticks all the boxes. It's a cult by any other name, and a particularly insidious and cruel one. Yep.
  7. Sean

    Recovery from chronic fatigue syndrome: a reflexive thematic analysis of experiences of people before, during and after treatment, 2025, Chalder+

    It is a deliberate childish snub. A petty transgressive FU. They are basically just making it up as they go. It has been their whole act all along. Yes. Such bald-faced propaganda and dishonesty has to be called out. Including the journal's peer-reviewers and editors for letting it through...
  8. Sean

    Upper Airway Resistance Syndrome (UARS): a common underlying cause for all "chronic complex illnesses"? (ME/CFS, fibro, GWI, etc.)

    I was diagnosed with sleep apnea a few years back, via a sleep study. It was due to structural blockage in the nasal cavity. Had surgery for it, and a subsequent sleep study showed it fixed the issue, by that standard. But it made no difference to the ME/CFS/FM symptoms. Nor, frankly, that much...
  9. Sean

    Fibromyalgia in obstructive sleep apnea-hypopnea syndrome: a systematic review and meta-analysis, 2024, He et al.

    This. I would also suggest not posting a comment immediately after writing it. Leave it overnight, or for a day or a week, and revisit it before posting.
  10. Sean

    United Kingdom: Sussex & Kent ME/CFS Society News

    Nasty dishonest stuff. :mad: But not surprising.
  11. Sean

    Activities of daily living following Long COVID: An exploratory cross-sectional study 2025 Rina Juel Kaptain et al

    The most prevalent symptom, fatigue, was moderately related to participants’ ADL ability. Yet another reason not to concentrate too much on fatigue for research or therapeutic purposes. Nor to rely heavily on defining conditions entirely by symptoms.
  12. Sean

    Functional Neurological Disorder Following COVID-19: Results From a Large International Electronic Health Record Database, 2025, Berlot, Edwards+

    In contrast to the biological factors influencing FND development, our study can provide less insight into the role of psychosocial influences, although these were likely contributors. How the hell can they draw that conclusion?
  13. Sean

    Recovery from chronic fatigue syndrome: a reflexive thematic analysis of experiences of people before, during and after treatment, 2025, Chalder+

    Chronic fatigue syndrome (CFS) is a chronic illness marked by severe, medically unexplained fatigue. Cognitive behavioural therapy (CBT) moderately improves fatigue and functioning. Starts badly and quickly degenerates from there in an entirely predictable manner. That it has Chalder's name on...
  14. Sean

    Who is Simon Wessely?

    And @ME/CFS Science Blog ?
  15. Sean

    Educating Doctors in Diagnosing ME/CFS

    Especially for those wishing to twist whatever we say to their own ends. And those good at convincing others they should be running things, but who are not actually any good at running things.
  16. Sean

    Cannabis users warn of painful syndrome linked to long-term use

    I was asked by a neurologist once in a hospital about using cannabis. Turns out what he was interested in was not so much if I used it but if I did then was I buying it or growing my own, and if buying it then what kind was I using. Apparently some of the commercial products, and especially the...
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