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  1. forestglip

    STIMULATE-ICP: [...] Phase III, open label, adaptive platform randomised drug trial in [LC]: [Protocol], 2023, Forshaw et al

    Thanks @Nightsong. If anyone's interested, here's a 51 minute talk from Emma Wall from earlier this year:
  2. forestglip

    STIMULATE-ICP: [...] Phase III, open label, adaptive platform randomised drug trial in [LC]: [Protocol], 2023, Forshaw et al

    See post #8 for abstract -------- Nature Medicine: "Eleven clinical trials that will shape medicine in 2026" "Nature Medicine asks leading researchers to name their top clinical trial for 2026, from long-awaited vaccines for infectious diseases to new treatments for advanced cancers and long...
  3. forestglip

    Running FLAMES on DecodeME data

    BioBank would be ideal, since it more closely matches the participants. But 1000G still worked well enough to get relatively the same results when I used it in FUMA the first time, mostly just less significant. I don't think @hotblack and I ended up finding a source for UKB LD files when trying...
  4. forestglip

    Running FLAMES on DecodeME data

    I don't think I tried fine mapping at all. That's about where I gave up trying to do FLAMES. (Edit: I don't think I did pops either actually.)
  5. forestglip

    [Abstract] Desentangling the [LC] biomarker network: Insights into viral persistence and therapeutic response using random forest [...], 2025,Sanson+

    The link still seems to work for me. This came up in Google Scholar alerts and can be seen in search results, but it links to the same thing.
  6. forestglip

    United Kingdom: ME Association governance issues

    Interesting and refreshingly self-aware. Some patients. But other forums are filled with people who think the treatment is in the next supplement. Or people who don't read about ME/CFS every day like us. They got sick, the doctor says there's a name for it, and they expect the doctor to do...
  7. forestglip

    Running FLAMES on DecodeME data

    Oh great, yeah I think I sent the wrong URL.
  8. forestglip

    [Abstract] Broadly neutralizing antibodies to SARS-CoV-2 in Long COVID areassociated with viral persistence and clinical outcome, 2025, Liu et al

    Broadly neutralizing antibodies to SARS-CoV-2 in Long COVID are associated with viral persistence and clinical outcome Chenyu Liu, Daniel Sanson, Serhan Soylu, Leen Moens, Isabelle Meyts, Marc Jamoulle, Johan Van Weyenbergh [Line breaks added] Abstract Long COVID (also known as post-acute...
  9. forestglip

    [Abstract] Desentangling the [LC] biomarker network: Insights into viral persistence and therapeutic response using random forest [...], 2025,Sanson+

    Desentangling the Long Covid biomarker network: Insights into viral persistence and therapeutic response using random forest feature selection Daniel Sanson , Chenyu Liu, Serhan Soylu, Leen Moens, Isabelle Meyts, Marc Jamoulle, Johan Van Weyenbergh [Line breaks added] Abstract Long COVID...
  10. forestglip

    Running FLAMES on DecodeME data

    Sure, it was private before, but it's public now: https://fuma.ctglab.nl/snp2gene/653365
  11. forestglip

    Heightened prevalence of chronic fatigue syndrome in U.S. sexual minorities, 2026, Balshi et al

    Heightened prevalence of chronic fatigue syndrome in U.S. sexual minorities Purpose To assess the prevalence and odds of chronic fatigue syndrome (CFS) among lesbian, gay, bisexual, and other sexual minority individuals (LGB+) in the United States using a multi-year, nationally representative...
  12. forestglip

    Running FLAMES on DecodeME data

    Sure. It's too big to upload here, but I uploaded it to a file sharing site. The link will expire in a week: https://limewire.com/d/gyXn2#CsV6DOeqGh The link isn't working for me. I think something was different. @ME/CFS Science Blog pointed out that there seemed to be fewer variants than...
  13. forestglip

    Long COVID Recovery and Exercise Adherence: 32-Month Study, 2025, Rolo-Duarte

    Could it be that 58.3% refers to the proportion of people with hypertension when only considering people with at least one comorbidity?
  14. forestglip

    Running FLAMES on DecodeME data

    This is based on a meta-analysis of different studies, right? So I don't think it should match exactly. Anyway, that plot shows the output of the MAGMA gene-based analysis, not the main analysis DecodeME did that turned up all the candidate genes like RABGAP1L and CA10. In theory, it should...
  15. forestglip

    Miscellaneous Research Thread

    Discussion about an FND study and FND prevalence was moved to: Functional Neurological Disorder (FND) - articles, social media and discussion
  16. forestglip

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Oh yeah, about this very claim/study: https://trialbyerror.org/2024/02/09/finally-our-letter-on-inflated-claims-of-fnd-prevalence-is-published/ Previously discussed...
  17. forestglip

    Functional Neurological Disorder (FND) - articles, social media and discussion

    It seems to be a common claim. Two examples: Functional Neurological Disorder: Historical Trends and Urgent Directions, 2023, Journal of Neurology Research (Link) Seminars in General Adult Psychiatry, p.369, 2024 (Link) Of the studies I looked at, they all seem to cite the same study...
  18. forestglip

    Investigating the Eye as a Biomarker of Gulf War Illness: Sphingolipid and Eicosanoid Composition in Tears and Plasma, 2025, Paule Jimenez et al

    Investigating the Eye as a Biomarker of Gulf War Illness: Sphingolipid and Eicosanoid Composition in Tears and Plasma [Line breaks added] Abstract Gulf War Illness (GWI) is a chronic multi-symptom condition affecting veterans of the 1990–1991 Gulf War, with ocular discomfort increasingly...
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