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  1. Sean

    News from Canada

    Be interesting to see a more granular breakdown of the 45-64 age group, maybe into 5 year intervals, to see if the rate goes up with age.
  2. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    Similar story here. Got sick one day in late Oct 1984, struggled hard with it, not helped by the medical profession's 'offerings', my life just vanishing before my eyes in a particularly opaque and horrible way. Eventually reached crisis point as nothing was working and my options had run out...
  3. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    That is probably the most significant change. Partly for support and solidarity, and partly because it has made it much harder for the authorities to pull the wool over patients' eyes and fob us off when we can directly access the medical literature and see for ourselves what the real state of...
  4. Sean

    Helping nurses prepare for uncertainty in clinical practice, 2025, MAY

    No consideration of whether it appropriate or not? Or is it just CBT for all?
  5. Sean

    Improving collaborative care networks for functional disorders and persistent somatic symptoms: a participatory action research study... 2025 Mamo+

    Don't you think you should have thought of that and adequately implemented it from day one of your grand FND project? This is what happens when you let clowns with Big Important Ideas™ play with people's lives.
  6. Sean

    News from Canada

    This may or may not be a bad thing, depending on what the clinic was offering. Patients need to be careful about what they wish for. If we are going to demand dedicated clinics then we need to be clear about what they can and cannot offer us. At this stage I think they have little to offer us...
  7. Sean

    Long COVID Recovery and Exercise Adherence: 32-Month Study, 2025, Rolo-Duarte

    How did they measure adherence? Indeed. They have not collected any data that reveals causation, and especially direction of any causation. But the whole point of doing science is to determine causal relationships. If a study cannot contribute to that then it is not scientific in any...
  8. Sean

    Which interventions are acceptable to patients for managing fatigue in long-term conditions?: A qualitative evidence synthesis,2025,Booth/Deary/Burton

    Because that is how snake oil merchants operate. Seriously. It is far worse than that: They don't want to ask them, and are actively working to prevent them being asked and honestly answered.
  9. Sean

    The National Archive Document BN141/1: The DWP file

    Thank you, @Valerie Eliot Smith.
  10. Sean

    The National Archive Document BN141/1: The DWP file

    Is that available in downloadable PDF form?
  11. Sean

    Long COVID Recovery and Exercise Adherence: 32-Month Study, 2025, Rolo-Duarte

    For which patients? No stratification. No mention of a control group. Retrospective. Impossible to determine causation. Patients who were going to improve/recover naturally probably did so anyway. If anything what they measured was the natural recovery rate, independent of exercise.
  12. Sean

    Which interventions are acceptable to patients for managing fatigue in long-term conditions?: A qualitative evidence synthesis,2025,Booth/Deary/Burton

    Acceptable interventions provide coherent explanations, What about accurate explanations? Does that have any relevance and importance? without imposing additional burden. Have you ever considered not burdening us with endless psycho-moral speculation, and just generally getting off our backs...
  13. Sean

    News from the USA, United States of America

    "We need less food. More exercise" Better quality food would help a lot too, (along with built environments that encourage more exercise, better bike paths, for example). Simply swapping high fructose corn sugar for conventional sucrose, which they have recently done, is not a significant...
  14. Sean

    Opinion (BMJ) Health information in age of social media and influence, 2025, Purnat & Scales

    can empower members through support and validation, What about through also offering a better understanding of the real state of research findings and clinical benefits (or lack of them)? However, they also risk amplifying unverified claims or deepening exclusion from mainstream care. What...
  15. Sean

    Somatic arousal and sleepiness/fatigue among patients with sleep-disordered breathing, 2016, Gold et al.

    You can in psychosomatics, they do it all the time. Construct validity and relevance are not important. Just ask them.
  16. Sean

    Would you say that you suffer from debilitating fatigue or extreme fatigue?

    And by implication those who tried to point out that psychologising it all and treating with CBT was highly inappropriate. Hard to find any kind words to describe the likes of Garner and Miller. I can't even grant them merely 'well-meaning' anymore. There are simply no excuses whatsoever for...
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