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  1. Sean

    New Zealand: ME Support news

    I cannot save the first two of those Google drive files to my desktop (as a PDF), they are only readable online, but the third one (the position statement) can be saved. Anybody know why? The first one in particular is a useful resource.
  2. Sean

    UK:'Challenging Harmful and Out-of-Date DWP Training on M.E./C.F.S.' [influenced by BACME] by Sally Callow, July 2025

    Maybe we need to get a patient produced and run monitoring system in place, looking at both compliance with NICE and harms reporting, that is completely independent of any official system.
  3. Sean

    UK:'Challenging Harmful and Out-of-Date DWP Training on M.E./C.F.S.' [influenced by BACME] by Sally Callow, July 2025

    And how is this approach in any way different from BACME's pre-NICE version? Is there no means at all to bring an end to this relentless assault on our lives by the psycho-behavioural cult? How in God's name do these people keep being allowed to so easily hijack and pervert every gain we make...
  4. Sean

    Heat vs. Fatigue: Hyperthermia as a Possible Treatment Option for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2025, Hochecker

    I too remain unconvinced. My experiences with both hot and cold weather don't provide any evidence that temperature extremes help in any way. If I was to study any weather based variables it would be humidity.
  5. Sean

    Is there a psychological vaccine against untruths?

    Evidence and logic, no matter how valid and compelling, are clearly not even close to being enough.
  6. Sean

    Heightened protective decision-making related to physical, but not cognitive, effort in individuals with fibromyalgia, 2025, Herman et al

    @Joan Crawford Good to hear. Thanks to you and your colleagues for continuing to plug away at this. :)
  7. Sean

    Is there a psychological vaccine against untruths?

    Is there a psychological vaccine against untruths? If there is then the psych profession itself has yet to take it themselves. I think there is one, and it is called robust methodology.
  8. Sean

    Sarah-Jayne Lewis - Coroner's report (trigger warning)

    The only possible conclusion being that they simply don't care. Endless token gestures and empty words not withstanding.
  9. Sean

    Chronicity rhetoric in health and welfare systems inhibits patient recovery: a qualitative, ethnographic study of fibromyalgia care, 2025, Cupit et al

    Can't get a result by following robust methodological standards, so demand they be allowed an exemption from those standards. What could possibly go wrong? Besides everything.
  10. Sean

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    And all the blame when it doesn't work out. It is about as nasty and dangerous a double bind as is possible to inflict on a human. They have left no possible response for patients that is both valid and safe. I still can't believe they are getting away with such an obviously false and cruel...
  11. Sean

    Heightened protective decision-making related to physical, but not cognitive, effort in individuals with fibromyalgia, 2025, Herman et al

    These findings suggest that difficulties with treatment adherence may stem from over-protective physical effort-related decision-making... Not from highly inappropriate 'treatment'? Didn't consider that rather obvious and critical possibility? The only 'over-protective' behaviour here is the...
  12. Sean

    Neuropsychological aspects of the patient’s personality in the context of psychosomatic experience, 2025, Krause and Forgon

    The arbitrary assigning of definitive causation without actual testing for it marches right on. It is the hallmark of modern psychosomatic anti-methodology.
  13. Sean

    UK House of Lords/ House of Commons - relevant people and questions

    So, no changes then, beyond some token tweaks to the marketing blurb.
  14. Sean

    News from Germany

    Mao had to accept that killing every sparrow in sight was not a good idea. Yes, there must be appropriate proportionate consequences for those responsible for this failure, or it will happen again. Allowing those responsible to escape any meaningful accountability during their lifetime is not...
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