Search results

  1. Sean

    Healthcare use and costs of functional somatic disorder in Denmark: a population-based cohort study (DanFunD) 2025 Petersen, Fink et al

    Functional somatic disorder (FSD) is a common condition characterised by persistent patterns of physical symptoms that cannot be better explained by other physical or mental conditions. Unless there is a translation issue, then this is a disingenuous rhetorical sleight-of-hand. They are not...
  2. Sean

    ‘There’s nothing wrong with you’: The making of disability through encounters in accessible parking spaces, 2025,Kubenz

    I qualify for a disabled parking permit, but have not taken it up for exactly these reasons. Not going to add another layer of abuse to what I already have to deal with. In a practical sense it doesn't make much difference, for various reasons. But there are occasions when I could benefit from...
  3. Sean

    Do we need a long-term actimeter study of PwME outside of treatment?

    I agree, as long as there are good records of what the patients do so it can be factored in. Should help reveal what helps and what doesn't, among other things. The key is having a large sample size, and doing it for long enough.
  4. Sean

    Do we need a long-term actimeter study of PwME outside of treatment?

    My answer is yes. Two actimeters. One on the dominant hand (wrist), and one on either ankle. Maybe a third on the upper dominant arm, just below the shoulder. Though that may be too impractical for long-term measurement. Using a range of bio-monitors on a large number of patients to measure...
  5. Sean

    Works of fiction where characters have ME/CFS

    Typically, even. At least initially. Something we are all guilty of to some degree. Which is why robust methodology is so important.
  6. Sean

    Somatization, psychological distress, and quality of life across [FM], [IBS], and their comorbid phenotype: ... 2025 Prospero et al

    Fibromyalgia (FM) and irritable bowel syndrome (IBS) are increasingly recognized as disorders involving central sensory processing and gut–brain axis dysregulation, Recognised by whom? Mostly by people who claim these conditions involve central sensory processing and gut-brain dysregulation...
  7. Sean

    Ken Ware - Neurophysics therapy

    Forgot to say that this testing was done more than 25 years after getting sick, which included some periods of being more or less bedridden. If deconditioning was going to show up it should have shown up by that point.
  8. Sean

    Ken Ware - Neurophysics therapy

    Adding to my initial comment on deconditioning: I have had some basic core strength testing done by doctors and physios and they could not find anything to be concerned about. Which is one of the reasons I am not convinced about deconditioning being a significant or primary feature of ME/CFS.
  9. Sean

    Ken Ware - Neurophysics therapy

    The deconditioning claim was made long before Garner got into the game. It was a central pillar of the original psycho-behavioural model put forward by Wessely, Chalder, et al, back in the early 1990s.
  10. Sean

    Ken Ware - Neurophysics therapy

    I have considerable doubt about that. If patients are more than mildly deconditioned then why can they immediately get up and do stuff when they have a good day or few hours? Obviously I am not saying they can suddenly run a marathon or do a two hour workout in the gym, especially not the more...
  11. Sean

    Recovery from Myalgic Encephalomyelitis/Chronic Fatigue syndrome developed after [SARS-CoV-2] vaccination: A case report, 2025, Kurotori et al

    There are two levels of proof in play here. The first is establishing that A causes B, at least on a probabilistic basis. The second is establishing the mechanism by which that happens. The psycho-behavioural advocates have established neither.
  12. Sean

    Estimating risk of long COVID using a Bayesian network-based decision support tool 2025 Lau et al

    Vaccination, receiving drug treatment within three days of acute infection, and avoiding repeated infections are the greatest modifiable influences of long COVID development, decreasing risk by up to 63 % under modelled scenarios. :thumbsup:
  13. Sean

    Protocol Cognitive behavioral therapy, exercise training, and cognitive remediation for patients with [LC]: protocol of an open-label [RCT] 2025, Gouraud+

    Very revealing. Should be more than enough to convict them and get them removed from the whole game. Should be. That is exactly what it is. There is no nice way to say this stuff, and we should not try to sugar coat it for anybody.
  14. Sean

    “How People With Chronic Fatigue Are Gaslit by Healthcare Systems” (States of Mind)

    Yes, the gaslighting is not for our benefit.
  15. Sean

    Protocol Cognitive behavioral therapy, exercise training, and cognitive remediation for patients with [LC]: protocol of an open-label [RCT] 2025, Gouraud+

    Not only has nothing changed in the BPS school, they are becoming more resistant to change and admitting error. 'It didn't work the first 3454 times, therefore we must try it again but even harder and with more conviction this time.' :mad:
  16. Sean

    Future healthcare for ...the common pain disorder ‘fibromyalgia...’ – fundamental changes based on the discovery of an immune cause, 2025, Goebel

    Over-medicalisation and over-diagnosis are detrimental to patients. And over-psychologising isn't? The problem is inaccurate diagnosis and inappropriate treatment, whether medical or psychological.
  17. Sean

    The FHJ debate: The NHS is failing to provide services for patients with symptom-based disorders, 2025, Burton et al

    That is largely true for the whole mental health field, IMO. They are as powerful and influential as ever, yet the mental health of society is not obviously better overall than it was previously, far as I can tell, and is even arguably declining. Either they do not understand mental health...
Back
Top Bottom