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Yes, trying to pass as well/normal in public. Even when feeling desperately lightheaded. Ages ago I got a bit dressed up to meet someone running for political office. If recall serves I had an appointment to meet with them. I was doing ME advocacy. Unfortunately, the candidate didn't meet...

@Kitty, I think your point is right on. For decades media has been stuck on portraying ME as photos of people looking tired and overwhelmed. As you say, portraying ME as a social phenomenon, not a serious disease requiring biomedical research and treatment.

Interesting. I've never seen non-IgE mediated milk protein intolerance noted as a common feature of ME. I've seen many discussions of allergies and sensitivities for pwME. Dairy and wheat are often in the frame. I wonder how common this milk intolerance is in comparison to alcohol intolerance...

Wow. Shocking number!

Ah, again....I am thinking very positively about that big lottery win coming my way! ;) And, at last, where has this fact been hiding? It's nice to know indulgent foods won't make me put on weight! :p

@John Mac Agreed.

The pandemic has revealed numerous cracks in Provincial health care systems in Canada. Recently, staff shortages, sick leave, pandemic burn out etc., have resulted in short term emergency room (A & E) closures in various places across this country, especially in rural centres. Millions in...

That's how I read it too.

This is a terrible situation, and what is made so much worse is the length of time this has dragged on. Sorry to say, my experience and that of some close to me is that some hospital staff deny a patient is in terrible pain. Not only where ME is concerned, but having a controversial illness...

Interesting re "hair loss" as a symptom with LC. I believe hair loss has been noted as a ME symptom. Early on with ME I experienced this. Untreated anemia, and untreated hypothyroidism can also cause hair loss.

Thank you for this @Hutan. Re the "holistic approach" noted in the article, it seems like just a lot of words to bulk up the impression of effective treatment. A very familiar tune.

Thank you for this @Sly Saint Several years ago, I came across one government institution in my neck of the woods whose seemingly insistent motto was, "Everyone can work." As in, "You're lazy or lieing, or both if you say you're too sick to work." Same old story. All grown from the same...

Previous MRI brain scan studies of pwME: https://me-pedia.org/wiki/Magnetic_resonance_imaging

Good to see this. ME Brain MRIs have been done before. I don't know how many, but IMO enough to cast doubt on the promoted cause of ME being psychological. This test should be done for all who have an ME/cfs diagnosis!

Pre-teen age, I was exposed too EBV in my home. Never developed the standard symptoms, but my propreoception was out of kilter for about a year: hit doorways instead of going through the entrances, and it was noteable that I was bumping into people in crowded settings, whereas before this was...

There it is again. Negative health perception. Used to be called "illness beliefs". And, maybe other terms. Maybe, or probably, medicine has a definition of healthy not known or understood by the general public. It seems to me It's rather a low standard. N=1: I've seen past reports on my...

Negative health perception? Well, if you have a chronic illness, or two or three, or four, etc., how can one have a positive health perception. That would be illogical, and not accepting reality. Not that a person has to go around always weeping or cranky, but it wouldn't be sensible to deny or...

Yes, @Peter Trewhitt. I haven't read the article either. The authors' lead and second sentences plant the idea, well It's already there in society, but it may serve to strengthen some beliefs that chronic stress causes illness. And in this case autonomic dysfunction. And, down the page that...

I haven't experienced leg paralysis. But, I have often become so weak and fatigued that I cannot move much further, and have to rest. At these times, my legs feel leaden and almost too heavy to lift another step. Walking uphill as @Milo said, is also painful for me. Lactic acid build up I...

Exactly my reaction @bobbler. Wow! An organization responsibly and promptly following the new NHS guidance. Surprising after being so mistreated and maligned for decades. Amazing to see.