Search results

Here are some reasons to think that the % of ME/CFS cases among Long Covid patients will be substantially lower than 50%: In the ONS survey, only 19% of those with self-report Long Covid symptoms, said that their ability to undertake their day-to-day activities had been "limited a lot"...

In the 3 studies from the Charité Fatigue Center (Haffke 2022, Sotzny 2022, Kedor 2022), the included Long Covid patients already suffered from persistent moderate to severe fatigue and exertion intolerance. So this was a highly selected sample, already quite similar to ME/CFS. It's also...

All three of the studies by Leonard Jason are just online questionnaires shared on social media. ME/CFS cases were determined by the (abbreviated) DePaul Symptom questionnaire without clinical examinations. I also think that the Jason & Dori 2023 and Jason & Islam 2022 describe the same...

Yes, I think there are other issues: The 58.7% for the Twomey 2022 paper seems to refer to the proportion of LC cases that had post-exertional malaise, not ME/CFS. Chronic Fatigue and Postexertional Malaise in People Living With Long COVID: An Observational Study - PubMed (nih.gov) In the...

Looks like a misleading review, most of these studies are surveys or come from single-centre clinics so have a huge selection bias.

Rodney Grahame himself highlighted CCI in this paper with Henderson: Comment on "Quantitative measures of tissue mechanics to detect hypermobile Ehlers-Danlos syndrome and hypermobility syndrome disorders: a systematic review" - PubMed (nih.gov)

From what I heard she was only offered bolus feeding through a NG-tube. There are a lot of patients (who are often given the diagnosis 'gastroparesis') for whom this doesn't work at all. Guidelines recommend a NJ, PEG-J or gastrostomy to provide sufficient nutritional support for such patients...

Also noted this paper where Alan Hakim is senior author. Presentation and physical therapy management of upper cervical instability in patients with symptomatic generalized joint hypermobility: International expert consensus recommendations - PubMed (nih.gov)

This paper gives a simplified overview of the hypothesis of how joint pain could lead to chronic and widespread musculoskeletal pain. Placing joint hypermobility in context: traits, disorders and syndromes - PubMed (nih.gov)

Hypermobility of the spine: Ehlers Danlos and neurosurgery, the route forward in the UK? A 2023 editorial on the problem but it doesn't say much. (11) (PDF) Hypermobility of the spine: Ehlers Danlos and neurosurgery, the route forward in the UK? (researchgate.net)

In adults, I couldn’t find that many studies. Larsson et al. 1995 This Swedish study on high-technology industrial plant found that 26% of workers with spinal hypermobility experienced back pain compared to 14% in those without hypermobility. ‘Spinal hypermobility’ might not be the best term...

For what it is worth here are some of the negative cross-sectional studies I found in western children. Unclear why most of the studies investigating this relationship were in (very young) children. Mikkelsson et al. 1996 (Finland same study as El-Metwally et al. 2004) 7.8% had Beighton score...

Have been looking into the relationship between hypermobility on the one hand and pain, disability and health on the other. In other words: do people with hypermobility have more pain and worse health dan people without hypermobility? It seems that there have been quite a few population-based...

Thanks, much appreciated.

Thanks. I do find this a strange situation. They do not list hypermobility as one of the measurements and they haven't published anything on this. If they have data on this it's probably the most valuable data on the topic, so why not publish it? Perhaps it was only assessed on a small subsample...

Apologies for picking out this statement 2 years later, but does anyone have a reference for this? I saw it mentioned a couple of times in various threads including by @Jonathan Edwards but can't find it in papers of the UK ME/CFS biobank. I'm not sure that the UK ME/CFS Biobank assessed...

I have this as well.

Couldn't they calculate a ME/CFS prevalence estimate in those with and without Sars-Cov-2 infection?

I don't know either. I was wondering how they did this - perhaps they recruited controls with the intention to match patients. Anyway, interesting analysis. Ok thanks, I've posted it here: https://www.s4me.info/threads/the-biggest-2-day-exercise-study-blog-me-cfs-skeptic.40267/

The study discussed is this one: Cardiopulmonary and metabolic responses during a 2-day CPET in myalgic encephalomyelitis/chronic fatigue syndrome: translating reduced oxygen consumption to impairment status to treatment considerations - PubMed (nih.gov) It has its own thread here...