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  1. Kalliope

    First test for long Covid gets EU approval, August 2022 - IncellDx incellKINE Long COVID test

    there are some sceptical threads on IncellDX and Dr. Patterson already, as this one https://www.s4me.info/threads/usa-incelldx-dr-patterson-new-lab-service-offering-cytokine-tests-to-covid-longhaulers.20434/
  2. Kalliope

    Long Covid in the media and social media 2022

    Science News Who has the highest risk of long COVID? It's complicated “There are a variety of different kinds of ways that people can have long COVID. It’s not just the one thing,” says Leora Horwitz, an internal medicine physician at New York University Langone Health. “That’s what makes it so...
  3. Kalliope

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    From Twitter. Bastian hopes it won't take long for the next report to come. "Not this week or next week, but can't be sure when."
  4. Kalliope

    Nature: A prospective observational study of post-COVID-19 CFS following the first pandemic wave in Germany... Scheibenbogen et al, 2022

    huh, I didn't know that. Thought it was the same thing. Thanks for pointing it out.
  5. Kalliope

    Norway: Røysumtunet, a centre for severe ME patients

    Professor Ola D. Saugstad has been interviewed about Røysumunet: TV2: Professor: - Veldig lovende resultater for ME-syke google translation: Professor: - Very promising results for ME sufferers quotes: One year after this first national offer for severe ME patients was established, you can...
  6. Kalliope

    Nature: A prospective observational study of post-COVID-19 CFS following the first pandemic wave in Germany... Scheibenbogen et al, 2022

    Quote: Taken together, our study provides evidence that patients following mild COVID-19 develop a chronic syndrome fulfilling diagnostic criteria of ME/CFS in a subset. By defining and characterizing subgroups of PCS patients we could identify associations of HGS with biomarkers which may...
  7. Kalliope

    Nature: A prospective observational study of post-COVID-19 CFS following the first pandemic wave in Germany... Scheibenbogen et al, 2022

    Full title: A prospective observational study of post-COVID-19 chronic fatigue syndrome following the first pandemic wave in Germany and biomarkers associated with symptom severity Abstract A subset of patients has long-lasting symptoms after mild to moderate Coronavirus disease 2019...
  8. Kalliope

    Long Covid in the media and social media 2022

    Financial Times The growing evidence that Covid-19 is leaving people sicker quotes: As he started to see a rise in certain conditions in the first year of the pandemic, Strain assumed it was the result of people being unable or unwilling to access healthcare. Only as the pandemic entered its...
  9. Kalliope

    Finland: Conference "ME/CFS + Long COVID" (with Systrom, Keller, Rowe and more) Can be streamed 7 October 2022

    The Finnish Association of Orthopaedic Manual Therapy organises a conference in October in Tempere, Finland. From the program: Friday, October 7, 2022 Finnish Time (+1 Hour CET/ +3 Hours UTC) 8.30 Registration, Coffee 9.00-9.05 Conference Opening 9.05-9.15 Welcoming, President of FIAOMT...
  10. Kalliope

    Distinguishing features of Long COVID identified through immune profiling, 2022, Klein, Iwasaki et al

    Article today about the study where Research Director Signe Flottorp from the Norwegian Institute for Public Health (FIH) comments. Google translated quote: The head of research at FHI is not surprised by what emerges in the American study, - It is interesting, but not surprising, says...
  11. Kalliope

    Long Covid in the media and social media 2022

    STAT Biden's long Covid plan is a good start. But it needs to go further by Ryan Prior and Kimberley Knackstedt quotes: Advocates and patients decry a lack of scientific progress and social recognition for the chronic disease that is upending their lives. ... Viewing long Covid through a...
  12. Kalliope

    Podcast: Pediatrics Research Roundup, Diagnosing and Treating Long COVID – Episode 64

    This was an informative talk with Dr. Rowe. Nothing new for us, but probably very useful for clinicians. Dr. Rowe says there is a variety of chronic symptoms after Covid. He distinguishes between Long Covid as in symptoms from the acute infection in for instance patients who were hospitalised...
  13. Kalliope

    Trial Report The most severely ill patients with ME/CFS in Denmark, 2024, la cour

    Peter la Cour has background among other as Leader of Knowledge Center for functional diseases in Copenhagen. CV in English here I don't know how he got interested in ME, but he has written several great articles where he's been very critical against classifying ME as a functional disorder and...
  14. Kalliope

    Trial Report The most severely ill patients with ME/CFS in Denmark, 2024, la cour

    Some translated pieces from the second half of the report: Social services 10 of the 19 participants didn't get any help at all regarding care from their municipality. Only 2 with need of 24 hour care were fully financially covered. The relationships with the municipalities were by almost...
  15. Kalliope

    Trial Report The most severely ill patients with ME/CFS in Denmark, 2024, la cour

    Agree. But perhaps Denmark is (still) the only country with clinics openly and specifically for functional disorders?
  16. Kalliope

    Trial Report The most severely ill patients with ME/CFS in Denmark, 2024, la cour

    Yes, bad translation by me. Blamed for the illness, might be better? I'll correct.
  17. Kalliope

    Trial Report The most severely ill patients with ME/CFS in Denmark, 2024, la cour

    Some translated pieces from the first half of the report: The home visits were done between January and April 2022. All participants had been diagnosed with ME by a specialist according to the consensus criteria. The home visits lasted between 2 - 4 hours. When possible, the patient...
  18. Kalliope

    Trial Report The most severely ill patients with ME/CFS in Denmark, 2024, la cour

    Moderation note: Abstract and link to the English version are in this later post - link ****** Yesterday the Danish Clinic Mehlsen by professor and psychologist Peter la Cour, PhD and Susanne la Cour, GP published a report based on home visits and interviews with 19 severe ME patients and...
  19. Kalliope

    Long Covid in the media and social media 2022

    A rare news story about long Covid from Norway. No mention of ME. It's about a study, Symptom burden and immune dynamics 6 to 18 months following mild SARS-CoV-2 infection - a case-control study, 2022 (Bergen COVID-19 Research Group et al) who followed up 233 Covid-19 patients from the start of...
  20. Kalliope

    Distinguishing features of Long COVID identified through immune profiling, 2022, Klein, Iwasaki et al

    Science Blood abnormalities found in people with Long Covid Quote: An ambitious study of people with Long Covid, the mysterious, disabling symptoms that can trail a SARS-CoV-2 infection, has turned up a host of abnormalities in their blood. The clues add to a body of evidence hinting at drivers...
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