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oh dear..

It's two pages from an application form. Don't know if it's still in use. Here's a quick translation: Application form The Lightning Process seminar Am I ready for the training program? Fill out this application form and send it to us. Once we have received it, you will get a place on our...

The verdict: Et 3-dagers kurs for kronisk utmattelsessyndrom/Myalgisk encefalopati (CFS/ME) hos voksne: en randomisert, kontrollert studie google translation: A 3-day course for chronic fatigue syndrome/Myalgic encephalopathy (CFS/ME) in adults: a randomised, controlled trial quote: Appeal...

Nina E. Steinkopf: Kontroversiell ME-studie får etisk godkjenning google translation: Controversial ME study receives ethical approval quote: A long-planned study where 100 ME patients will be treated with the alternative method Lightning Process received ethical approval in 2020. Following...

I'm shocked

A paediatrician specialising in infectious diseases named Paul A. Offit was guest at the latest This Week in Virology. At 38.12 prof. Racaniello asks him whether or not vaccination against Covid-19 prevents Long Covid. Dr. Offit answers with a deep sigh and asks them to define Long Covid. He...

The project leader is a psychologist at the Norwegian Competence Center for CFS/ME. They have a biopsychosocial approach to ME, and promote exercise, therapy and even LP. What a pity! The Norwegian Women's Public Health's Association does important work, has money to fund research, and is...

It's worrying that they recommend "activating" children with Long Covid. Why so dismissive of convalescence?

Brian Vastag says on Twitter that NIH is launching a small spin-off study of mitochondrial function in muscle tissue in ME/CFS

Introduction: Coronavirus disease 2019 (COVID-19) is prevalent among young people, and neurological involvement has been reported. We investigated neurological symptoms, cognitive test results, and biomarkers of brain injury, as well as associations between these variables in non-hospitalized...

no, it's not official yet what the National Committee for Medical and Health Research Ethics decided regarding the ethical approval. Hope we'll get some news soon.

I'm reading between the lines here that Dr. Koroshetz says ME is not "solved" yet due to its complexity, not for lack of trying. But due to brain fog I'm always unsure if I've misunderstood something. Do you interpret the quote in the same way?

Some titles from the program of this year's EAPM conference in Wien earlier this month: Sharpe: "Biopsychosocial medicine: the EAPM mission" Panel discussion: Functional somatic disorders - a new common classification for persistent somatic symptoms New Challenges in somatic symptom and...

The Swedish patient organisation RME is once again organising their annual ME conference. The conference will take place in Stockholm (12th Oct) and Malmö (13th Oct) as well as in digital version. The title of the conference and program (translated): The disease's many faces - a conference...

The Swedish Parliament has supported a motion to ask the Government to investigate how a National Competence Centre for ME/CFS can be established, according to Sten Helmfrid on Twitter:

The study is funded (I belive in full) by patients and patient organisations.

More information at Current Research Information System In Norway (CRISTIN) where there's a description of the research project with a summary of the hypothesis behind trying this drug. Google translated: We have recently summarized our hypothesis (Fluge, Tronstad and Mella, Journal of...

Good point. I hope they have thought about it and are able to take precautions at the hospital. It's a cancer ward, so they must be? As far as I understand the injection only takes a few minutes, so participants don't have to stay for hours in a room with other people for treatment. Otherwise...

Wikipedia on Daratumumab: Daratumumab, sold under the brand name Darzalex, is an anti-cancer monoclonal antibody medication. It binds to CD38,[2] which is overexpressed in multiple myeloma cells.[3] Daratumumab was originally developed by Genmab, but it is now being jointly developed by Genmab...

Fluge et al are recruiting six moderate to severe ME patients for a pilot trial on Daratumumab. Participants need to be able to travel to Haukeland University Hospital in Bergen and been diagnosed according to the Canadian criteria from 2003. They need to be between 18 and 65 years old and...