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The newspaper Dagsavisen has an interview today with researcher Anne Kielland. A letter from the Directorate of Labor and Welfare emphasises that patients with ME or with drug addiction "require particularly in-depth assessments" when the Norwegian Labour and Welfare Administration (NAV) is...

Nina E. Steinkopf: Recovery Norway; a PR agency for researchers? quote: Both NICE and the CDC are clear that GET can be harmful for ME patients. In other words, we are in the middle of a paradigm shift in the ME field. Strong forces try to counteract this though, in order to maintain...

Trisha Greenhalgh is one of the keynote speakers Professor Wilkinson from the Mayo clinic will talk about how to establish trust in 10 minutes. The talk is titled "Almost as good as continuity: Establishing a trusting relationship in 10 minutes" Quote: We have developed a framework for a...

CBS News - Transcript: Dr. Walter Koroshetz on "Face the Nation," June 5, 2022 quote: Those people with post-infectious mononucleosis, people with post-Lyme, they've been suffering the same things. There's a condition called Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, that looks...

Missoulian Missed risk: Long COVID threat extends far beyond pandemic The article is available as audio version as well. quote: In January, the journal Infection Control Today compiled other research forecasting more than 8 million Americans would develop long COVID. That’s at least three...

The Science Bit by prof. Brian Hughes 'Cancel culture' paranoia and other right-wing hysterics reveal medical conservatism's true colours quote: Chapter 3. First They Came for the Communists: The bitter row over ME/CFS research This is an outright attempt to diminish critics by juxtaposing...

Trial by Error by David Tuller Science Media Centre Chief Compares Patient Advocates to Nazis quote: In a widely hyped new book–“Beyond the Hype: The Inside Story of Science’s Biggest Media Controversies”–Fox recounts her escapades as the head of this purportedly neutral science communications...

Short interview with prof. Mady Hornig on Long Covid and her own battle with it. I was hoping she had been improving, but she mentions several issues she's struggling with and that she's been bed bound :( wbur Long COVID is far more prevalent than you might think

Podcast from CDC Featured Podcast on ME: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M-E-C-F-S): Better Understanding of a Complex Illness Interviews Dr. Unger Duration: 16 minutes

An awful story from Norway. The Norwegian Labour and Welfare Administration required ME sufferer Jane to undergo a gastric sleeve operation before she could get welfare. She lost 30 kg, but is no better from her ME. They then said she hadn't had sufficient CBT. Jane has been referred to...

Trial by Error by David Tuller Deja Vu All Over Again with Proposed Lightning Process Study in Norway Quote The proposed LP trial led by LP investigator and Recovery Norway co-founder Landmark cannot be supported on scientific and ethical grounds, for multiple reasons. It is troubling that key...

Mady Hornig on Twitter about the article:

The Norwegian news site for research, forskning.no had a good article about the study with a couple of referrals to ME as well. Vi vet altfor lite om langvarige plager etter infeksjoner, mener forskere We know far too little about long-term ailments after infections, researchers says quotes...

One of the authors is Binita Kane, lung doctor and member of Independent Sage. If I remember correct, she mentioned on one of the Independent Sage briefings that she has a child suffering from Long Covid, and she seems sympathetic to both Long Covid and ME/CFS.

Quote: The varied presentation of long COVID, particularly the neuropsychiatric complications, can cause uncertainty for GPs, making the diagnosis difficult. Whatever this uncertainty for clinicians, however, primary care must play a key role in supporting young people with long COVID and their...

Continued:

Twitter thread from Ziyad Al-Aly, one of the researchers behind the study:

That's great. Thank you! I was pondering on translating it manually when the only thing available was a PDF, but wasn't up to the task. However, please ask if there's something in the automatic translation that's unclear.

I am sorry you've caught it twice, @Jonathan Edwards Hope next week will be even better. The Washington Post has an article about the study: Vaccines may not prevent many symptoms of long covid, study suggests quotes: “This was disappointing,” said Ziyad Al-Aly, lead author and chief of...

Prof Amitava Banerjee, professor in clinical data science and cardiologist summarises on Twitter: