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  1. Kalliope

    Long Covid in the media and social media 2022

    Podcast JOSPT Insights: Ep 77: Less is more - the mindset shift clinicians need for long COVID, ME and other post-viral illness, with Dr. Todd Davenport "How prepared are you to support someone who is living with post-exertion symptom exacerbation? Dr Todd Davenport wants to start a...
  2. Kalliope

    JOSPT: Lessons from ME/CFS for Long COVID - 4 part series, 2022, Davenport et al

    Posts copied from the Long Covid thread. Podcast JOSPT Insights: Ep 77: Less is more - the mindset shift clinicians need for long COVID, ME and other post-viral illness, with Dr. Todd Davenport "How prepared are you to support someone who is living with post-exertion symptom exacerbation? Dr...
  3. Kalliope

    Long Covid in the media and social media 2022

    Podcast In The Bubble with Andy Slavitt "Everything we know about Long COVID" Interview with Akiko Iwasaki and David Putrino https://open.spotify.com/episode/5cQ8kWFToz9vFArMA2gE5c (haven't listened to it yet, but looks good)
  4. Kalliope

    Bodies in lockdown: Young women’s narratives of falling severely ill with ME/CFS during childhood and adolescence, 2022, Krabbe et al

    I don't quite understand why they only picked participants who had recovered. At least without saying how representative they are for the patient group. Towards the end of the discussion they imply that severe ME is a strategy where "the body protects itself" as "a body that is shut down is no...
  5. Kalliope

    BPS attempts at psychologizing Long Covid

    Dr. Asad Khan is not happy with a POTS management clinic
  6. Kalliope

    Long Covid in the media and social media 2022

    Medscape has had some pretty good articles on both ME and Long Covid, so I have no idea how they managed to come up with this in their Long COVID Quiz: Proposed primary care guidelines for the diagnosis of long COVID suggest that if COVID symptoms persist without other etiology that reasonably...
  7. Kalliope

    Fatigue - is it the main symptom of ME/CFS and Long Covid? Discussion thread

    This post has been copied from the Long covid in the media thread to start this new thread because it triggered a discussion of whether fatigue should be described as the 'main symptom' of Long Covid and ME/CFS. The following discussion has been moved. ___________________ Medscape has had some...
  8. Kalliope

    BPS attempts at psychologizing Long Covid

    yes, unfortunately, based on previous tweets by the doctor from the Norwegian Institute of Public Health, I don't think he's particularly concerned about Long Covid (and/or ME).
  9. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Patient advocate Sissel Sunde are among those who sent complaints to the Regional Committees for Medical and Health Research Ethics (REK) about the LP study. He complaint are among those that got dismissed, so she has shared it on her blog. Her main concerns are: That selected participants...
  10. Kalliope

    BPS attempts at psychologizing Long Covid

    A Senior Medical Officer at the Norwegian Institute of Public Health shared a picture on Twitter showing that Covid-19 hospital admissions are going down, which is good news. He comments: - But, what about "long-covid"? I read the comment as a sarcastic attempt to ridicule both long covid and...
  11. Kalliope

    Tjenesten og MEg | The health service and ME, Sintef FaFo

    This week there was an interpellation to Ingrid Kjerkol, the Norwegian Minister of Care and Health Services about what she will do to better the health care services for ME patients. The background for the interpellation was an article in the newspaper Klassekampen where researchers from this...
  12. Kalliope

    News from Finland

    I wouldn't have been able to recognise any of those words :confused: How interesting that Finnish and Hungarian are similar, didn't know that.
  13. Kalliope

    News from Finland

    So nice to see a Finland thread :) I visited once and would love to go back sometime. Only know "Hyvää päivää", which means good day. Looking forward to learn more about ME and Finland in this thread.
  14. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    One of the Regional Committees for Medical and Health Research Ethics (REK Midt) has approved the Lightning Process study, as @Midnattsol says. This committee is the same that approved the study in the first round. The case will now be sent to the National Committee for Medical and Health...
  15. Kalliope

    Long Covid in the media and social media 2022

    Popsugar Why Long COVID Makes It So Difficult to Exercise Interview with Linda Geng, MD, PhD, director of the Post-Acute COVID-19 Syndrome Clinic at Stanford who says areas explored for explaining PEM are: - Blood vessel and nerve fibre damage - Heart issues - The SARS-CoV-2 S1 protein -...
  16. Kalliope

    Coming study: Short-time behavioural intervention in post-Covid syndrome: A pragmatic randomised controlled trial (SIPCOV), Wyller, Flottorp et al

    We say "tull" but I couldn't find any info of its etymology, so don't know what it means other than it's used both for nonsense and for innocent kidding around. Tripe is much more fitting!
  17. Kalliope

    Coming study: Short-time behavioural intervention in post-Covid syndrome: A pragmatic randomised controlled trial (SIPCOV), Wyller, Flottorp et al

    This is what pacing is called in Norwegian - activity adaption. So graded activity adaption means graded pacing. I laughed out loud when I read it first time. It's just too absurd.
  18. Kalliope

    Coming study: Short-time behavioural intervention in post-Covid syndrome: A pragmatic randomised controlled trial (SIPCOV), Wyller, Flottorp et al

    Wyller and Flottorp recently talked about Long Covid for an article by the Norwegian broadcaster NRK. The article was shared in the thread "BPS attempts at psychologising Long Covid", but its of relevance here as well: Ekspertar meiner korona varer lenger om du er redd google translation...
  19. Kalliope

    Coming study: Short-time behavioural intervention in post-Covid syndrome: A pragmatic randomised controlled trial (SIPCOV), Wyller, Flottorp et al

    The treatment in SIPCOV is (google translated from the presentation): You first get an hour with a doctor where we map your condition. Our understanding of your condition is reviewed with you, including what can happen in the body during and after an infection. This knowledge and understanding...
  20. Kalliope

    Studying severe long COVID to understand post-infectious disorders beyond COVID-19, 2022, Brodin, COVID Human Genetic Effort Consortium et al

    Moved post Nature correspondence: Studying severe long COVID to understand post-infectious disorders beyond COVID-19 by Petter Brodin et al Collectively, we believe that our genetic and immunological studies of patients with severe long COVID hold potential for better understanding of this...
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