Search results

  1. E

    Rosetta Stone Study: £1.1m awarded to investigate links between ME/CFS and Long Covid

    I'm glad to see this, and looking forward to knowing what definition of 'Long Covid' they're using.
  2. E

    The ME Association Clinical Assessment Toolkit (ME-CAT) and app (autonom-e)

    Perfect example of how far detached from reality their whole approach is.
  3. E

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    It's not clear at all. It isn't stated on the page where the list of trials is advertised. You have to click an 'i' in a circle and go through to a different page that gives the information - and how many people will want to do that or know that they need to? This is the same issue I had with...
  4. E

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Then they should make it clear in the part of the app which highlights and promotes these trials that "our small team" aren't endorsing these trials and that they may involve risk. So sick of people using automated technology as an excuse to avoid responsibility.
  5. E

    Recovery from chronic fatigue syndrome: a reflexive thematic analysis of experiences of people before, during and after treatment, 2025, Chalder+

    "You see, it's not that CBT isn't helpful, it's just that the poor dears don't realise they've been helped."
  6. E

    Review Evaluating Pacing Therapy versus GET for improving fatigue, pain, and quality of life in adults with ME/CFS, 2025, Cooper

    Just noticing this is now dated October 2025, don't know if there have been any significant amendments. https://www.sciencedirect.com/science/article/pii/S1360859225002025
  7. E

    Effect of subcutaneous lidocaine–hydroxypropyl-β-cyclodextrin (HP-β-CD) on quality of life in patients with post-COVID condition…, 2025, Oostwouder+

    Single-digit improvements in subjective symptom scores over 36 weeks, from low 30s to mid or high 30s, still well below the score of 50 which suggests poor health on the SF12. That's not making me want to queue up for daily subcutaneous injections. Nope. Also nope.
  8. E

    Relationship between body mass index, gray matter volume and peripheral inflammation in patients with post-COVID condition, 2025, Claaß et al.

    I've found that one way to get a quick sense of papers like this is to do a keyword search for terms such as 'however'.
  9. E

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    The title 'Prioritise Research Over Training' lends itself to an acronym, which apparently one has to have these days. Prioritise Research Over Training and End Counterproductive Therapies for ME - PROTECT-ME?
  10. E

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    There's a rapid response to that BMJ piece from Edoardo Cervoni, Director, Locumdoctor4u Ltd. Southport https://www.bmj.com/content/390/bmj.r1585/rr Excerpt: He should join S4ME (unless he already has, under a pseudonym!)
  11. E

    The ruling out of other conditions: do you think you've had adequate ruling out of other conditions?

    The King wouldn't be satisfied with standard care, that's for sure. https://www.independent.co.uk/life-style/royal-family/king-charles-homeopathy-head-medical-household-b2461795.html https://www.facultyofhomeopathy.org/pages/Patron
  12. E

    A Mixed-Methods Evaluation of a [Post-COVID] and Recovery Intervention Delivered in a Football Club Community Trust, 2025, Rimmer et al.

    There was that tennis programme. https://www.s4me.info/threads/uk-nhs-feel-good-tennis-for-long-covid.38700/
  13. E

    Scientific research journals and publishers

    https://neuromatch.social/@neuralreckoning/115621920496307977 Post includes horrendous AI slop image from the first publication referred to.
  14. E

    Construct validity of self-reported and interview-guided administration methods of the Danish version of the [PCFS], 2025, Sørensen+

    Another example of the assumption early in the pandemic that the sequelae of Covid-19 would mainly involve respiratory complications. It's good that the failings of this approach are being recognised.
  15. E

    Distinct brain alterations and neurodegenerative processes in cognitive impairment associated with post-acute sequelae of COVID-19, 2025, Seo et al.

    Is the stuff about iron accumulation potentially interesting? Thinking of a few other studies where iron/ferritin has come up.
Back
Top Bottom