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Some autistic children (and adults) have self-soothing/'stimming' habits such as skin picking and/or difficulties with hygiene routines that mean they are more likely to have repeated infections. I wonder if dietary differences might play a role too.

What does a vertical accelerometer measure? Would it record the difference between, say, resting in a chair with your feet up while reading/working/doing something manual (eg knitting) and resting in bed with the curtains closed doing absolutely nothing?

It is 2024 and this claims to be "the first study to implement exercise intervention for people recovering from COVID-19".

Hard to read about this guy repeatedly pushing himself into crashes, and reinfections giving him new problems. "“Every time I’ve had Covid, my long Covid has changed,” he said. Since his most recent infection, in January, he pauses more when speaking, he said, and is more halting when writing...

The Guardian's story on this was subtitled "Four-year study of patients finds ‘markedly few’ differences between people who have long Covid and those who do not” :banghead: I emailed the readers' editor and it's now been changed to "...'markedly few' differences in test results between people...

I'm another one who does seem to get a minor benefit from LDN and had that overstimulation-overexertion issue when first going up to a higher dose. I also wonder about what the dosage recommendation is based on, whether bigger studies could look at different doses and ways of taking it.

I would love to know whether Prof Greenhalgh avoids crowded indoor spaces and wears a well-fitting mask when she can't avoid them. I mean I would genuinely be interested to know. There's such a lot of do-as-I-say-not-as-I-do among the scientific community about Covid precautions.

The physiotherapist at my LC clinic suggested I try this technique. I found it really difficult and unpleasant: almost immediately I would feel lightheaded and see stars, then would come a point where I'd automatically have to take big gulping breaths until I felt relatively normal again. I told...

https://cerebra.org.uk/research/systems-generated-trauma-survey/

Interesting stuff. Looking at tags, there seem to be a few papers that have found the same sort of thing, but it doesn't come up much in general discussions of Long Covid.

If he really wants people to 'put aside polarising narratives' and engage in productive conversations, I'd suggest that a positive first step would be for him to stop employing the glaringly obvious strawmen and false equivalences which make it very clear that he's engaged in a spin operation.

is it though?

Ah thank you, that's not a thread I normally look at!

https://mastodon.social/@_slotek_/112847835155852556

To save anyone time if you were thinking of going to read the paper: it's just as weak and dishonestly slanted as you might be imagining.

Seen on social media, not an ME case but relevant to eating difficulties being treated as a mental problem not physical: https://www.justgiving.com/crowdfunding/Help-Megan-debs-wood

It's interesting to see journalists being unafraid to present the psychological view of ME as a causal factor in the failings of care. I wonder if we'll see any pushback from the BPS guys (via the SMC?)

There's a group called Not Fine in School for parents of children experiencing exclusion from education for a range of reasons, including health conditions - they might be able to give you some contacts. They have a Facebook group just for parents and carers which has 60,000 members, but their...

Postscript: sometimes the amazing improvements reported in case studies of toddlers turn out to be mainly that they got a couple of years older (but their parents spent a massive amount of money so we have to do a write-up).