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  1. Sean

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Yes, be careful what you wish for. Something is not necessarily better than nothing. Depends on what that something is.
  2. Sean

    Psychological flexibility as a predictor of work engagement and symptom severity in personnel with chronic fatigue syndrome, 2025, Surendran

    The findings highlight the potentially important role of psychological flexibility in mitigating symptom severity and enhancing work engagement among individuals with chronic fatigue syndrome. It does no such thing. You have not established causation.
  3. Sean

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Because the government is ashamed of it. They are giving every indication that they want it to quietly disappear down a deep dark hole, as fast as possible. Suggests strongly that they know it is a massive fudge and failure, and that any name associated with it will be covered in merde. My...
  4. Sean

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Yes, somebody is doing well out of our suffering. I sit on a man's back, choking him, and making him carry me, and yet assure myself and others that I am very sorry for him and wish to ease his lot by any means possible, except getting off his back. Leo Tolstoy – Writings on Civil...
  5. Sean

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Repurposing drugs, at this stage, lacks the necessary rationale to choose which drugs to test. Though DECODE might provide some. Also agree that most patients do not need any specific 'treatment' or management advice, beyond a few basics. Sort of thing that could easily fit on a page or two...
  6. Sean

    News from Germany

    Yeah, that's what we need. More mental health/psychosomatics/functional disorders. Just hasn't been enough of it. Interesting that it is the only thing they specifically mention we need more of. Nothing else.
  7. Sean

    New Zealand: ME Support news

    I cannot save the first two of those Google drive files to my desktop (as a PDF), they are only readable online, but the third one (the position statement) can be saved. Anybody know why? The first one in particular is a useful resource.
  8. Sean

    UK:'Challenging Harmful and Out-of-Date DWP Training on M.E./C.F.S.' [influenced by BACME] by Sally Callow, July 2025

    Maybe we need to get a patient produced and run monitoring system in place, looking at both compliance with NICE and harms reporting, that is completely independent of any official system.
  9. Sean

    UK:'Challenging Harmful and Out-of-Date DWP Training on M.E./C.F.S.' [influenced by BACME] by Sally Callow, July 2025

    And how is this approach in any way different from BACME's pre-NICE version? Is there no means at all to bring an end to this relentless assault on our lives by the psycho-behavioural cult? How in God's name do these people keep being allowed to so easily hijack and pervert every gain we make...
  10. Sean

    Heat vs. Fatigue: Hyperthermia as a Possible Treatment Option for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2025, Hochecker

    I too remain unconvinced. My experiences with both hot and cold weather don't provide any evidence that temperature extremes help in any way. If I was to study any weather based variables it would be humidity.
  11. Sean

    Is there a psychological vaccine against untruths?

    Evidence and logic, no matter how valid and compelling, are clearly not even close to being enough.
  12. Sean

    Heightened protective decision-making related to physical, but not cognitive, effort in individuals with fibromyalgia, 2025, Herman et al

    @Joan Crawford Good to hear. Thanks to you and your colleagues for continuing to plug away at this. :)
  13. Sean

    Is there a psychological vaccine against untruths?

    Is there a psychological vaccine against untruths? If there is then the psych profession itself has yet to take it themselves. I think there is one, and it is called robust methodology.
  14. Sean

    Sarah-Jayne Lewis - Coroner's report (trigger warning)

    The only possible conclusion being that they simply don't care. Endless token gestures and empty words not withstanding.
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