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Good interview, and good for Dutch patients to have somebody like Zurhake on the case. :thumbup:

The similarities between Long COVID and ME/CFS have given researchers new urgency to find real solutions. Many of us in functional medicine... I stopped reading there. Anytime I see the word 'functional' in this context I see a major red flag with Snake Oil Merchant written all over it.

I am not expecting any serious issues for the vast majority of patients, who I think will simply start getting on with what is left of their lives. The biggest problem is going to be stuff like recovering financially, and dealing the often decades long extreme trauma and personal loss many of...

ME/CFS shares many of the same characteristics as other functional disorders (acute/subacute onset often after a physical or mental stressor, fluctuating symptoms often moment to moment or day to day, and disability level out of proportion to exam findings/pathology). Also, it is highly comorbid...

I use an $8 plastic dustpan brush. Get maybe 12 months out it. One of these:

Recovery depends on positive patient engagement with the process. If our pseudo-treatment doesn't work it is the patient's fault. Yep. It is the mother of all double-binds.

marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing...

I am at the point where merely getting the psycho-tyrants off my back for what remains of my life existence would be a major win, let alone getting a good treatment, or even a cure. Though, of course, I would love a good treatment or a cure as much as anybody, and want competent research into...

This.

such as symptoms that cannot be explained medically.... physical symptoms where healthcare cannot demonstrate objective findings for physical illness. Can never demonstrate, or has not yet been demonstrated? Because it is a very critical distinction, which he did not make clear. In the first...

Phil Hammond is no friend to us.

What is the definition of structural in medicine? Is it confined to a specific tissue or group of morphologically coherent tissues (e.g. red blood cells, bone, muscle, an organ)? In particular, does structural pathology have to be either more-or-less static (e.g. a missing limb), or which only...

Yes, it is going to be interesting to see how far back the technology and knowledge existed to have enabled the basics to be revealed. If it turns out it enough of the basics could have been known decades back there will be hell to pay. :mad:

We postulate... we speculate... Yeah, we know.

Unfalisifiable, then. Alleged positive signs not withstanding.

Nor anything else. The Oxford criteria as basically just prolonged fatigue with no other (known) explanation.

:hug: For all therapeutic solutions, NICE rated all clinical trials as providing weak or very weak quality medical evidence, without exception. It is worse than even that. The vast majority (89%, IIRC) were rated as very weak, and the remainder as weak.

And please provide a robust definition of overactive, in this context.

It is like there are two different people writing their stuff, who never talk to each other.

He is an epidemiologist, was a professor in evidence synthesis for two decades, and is currently an emeritus prof in the same position, and has done a lot of work on systematic reviews and with the WHO, etc. He of all people should know what constitutes robust methodology. He has no excuse...