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I am taking bets on how long before attendance at JFK Jr's proposed wellness centres becomes compulsory for chronically disabled and sick, and how those attending will be put to (unpaid) work for private corporations as part of the, um, re-education process. This is not going to end well. Don't...

And underpayments?

standardisation of rest in fatigue interventions People should rest when they need to. Nothing more, nothing less. This obsession with 'standardising' everything is half the damn problem.

Point taken. OTOH, it is the responsibility of the pros to do robust assessments. I don't take what patients say at face value either. I have learned the hard way how easily we all can fool ourselves. Me included.

No fundamental difference to this, IMHO: https://en.wikipedia.org/wiki/The_Secret_(Byrne_book) Sold over 30 million copies, more than $300 million in sales, and also made into two films. The only reason this toxic drivel fantasy persists throughout the ages is because enough people – and a...

Of course a bajillion years of evolution has prepared us for the early intuitive, less overt and specific, warning signs of approaching health trouble. It is bizarre to me that anybody would think otherwise, and devote their time to boldly declaring these alerts to be both a false foreboding...

A recent systematic review highlighted significant shortcomings in activity pacing interventions for ME/CFS, noting that they lacked rigour, were brief, and did not follow guidelines or integrate recommended technology, limiting their relevance for modern energy management. And then proceeds to...

A fairy tale. The Narrative Rules All. An entire profession, even. (With some honourable exceptions.)

Do we know this? Otherwise, I agree.

Wessely. https://www.nationalelfservice.net/other-health-conditions/chronic-fatigue-syndrome/the-pace-trial-for-chronic-fatigue-syndrome-choppy-seas-but-a-prosperous-voyage/ In an email exchange with Julie Rehmeyer, in 2016, he also said this: Simon Wessely, president of the UK Royal College...

It is becoming so. ME/CFS was just the trial run for them to test out how far they could get away with it. Turns out it was quite a long way, and is ongoing.

Well said, @Nightsong. They are utterly disingenuous and self-serving, from start to finish.

For ME/CFS at least, the psycho-behavioural crowd crossed that bridge very early on, IMHO.

There is a growing scientific controversy And people like you are going to make damn sure there is.

Yes, they just elide straight over that critical bit, making sure to never examine the possibility that patients' reluctance to push through PEM is completely justified. IOW, that patients are actually interpreting the somatic signals from their bodies correctly. As they have been doing for...

And as an excuse to not look for any.

Yes, patients need to be a lot more careful about we wish for. Something is not always better than nothing.

And mine. Even if some form of carefully titrated exercise is safe and can help reduce long-term secondary consequences of ME/CFS (mainly cardiovascular deconditioning related, I presume), there is no good evidence that it actually reduces the primary symptoms and burdens of the disease and...

This demonstrates the one thing I think AI is good for, big improvements in efficiency at dealing with large datasets. But I seriously doubt that it is going to deliver amazing new conceptual insights, of itself. Seen no evidence for that thus far.

Including ME/CFS within RECOVER’s scope is not just an opportunity — it’s an imperative. Hard agree. Even if ME/CFS & LC turn out not to be exactly the same, they clearly have a huge overlap, and resources will be much more effectively spent studying them together.