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Oh Tret is what all the 40+ skincare gurus are using. I see this was already mentioned. This kind of reminds me of Bryan Johnson, known as the “don’t die” guy. He is a retired tech millionaire as well, although he’s mainly experimenting on himself and Co-incidentally sells the supplements he...

Three years without it was torture. 100mg after waking stops me from going back to bed. It won’t work for everyone, and I don’t start dictating what others should do just based on my own experience! I think it’s fine if the BF thing helped him, or he thinks it did. Not any of us are where he...

Three years without it was torture. 100mg after waking stops me from going back to bed. It won’t work for everyone, and I don’t start dictating what others should do just based on my own experience! I think it’s fine if the BF thing helped him, or he thinks it did. Not any of us are where he...

I’m very pro-caffeine

What an amazing Co-incidence!

I think it might be ego/biohacking bragging rights. Apparently he is a tech millionaire who retired early so this is his pet project. He’s obviously quite clever but that’s doesn’t make him right. Stockton Rush was very clever and rich and died when his submersible imploded.

“Sugar and caffeine combo provides immediate boost for pwME” shocker.

I personally was excited to have one treatment to cure my hEDS, FMS, Audhd and ME/CFS. I’m long sighted too. /sarcasm

I mean, the article quoted concludes that they are a hoax, really. https://www.dailymail.co.uk/sciencetech/article-14346729/Scientists-studying-alien-mummies-Peru-new-details-emerge.html Imagine having to use the Daily Mail to prove a scientific point, though.

The point being for every person who claims they found the cure, these are some of the most famous/recent ones

Yeah, for every Paul Garner/Miranda Hart/Whitney Dafoe there are a hundred of us where it didn’t work, or made thinks worse. Go fund yourself a scientific study if it’s so brilliant.

I’m so sorry. I struggled with speaking a lot for a few years, I could only whisper, and it still disappears at the end of each day for me. It’s not given enough attention as a symptom.

Yes, it is a meme, I used it to create mine!

Shame. Maybe he has changed? I like that he states there’s no treatment or even agreed management of ME though. I wish he’d tell BACME.

Of course, that’s what all this is: they can’t admit they don’t know and there aren’t any answers.

I really don’t know. We don’t get tested for viruses like chest infections or flu. It was flu-like, sweating, sore throat, cough, fatigue but never really very serious, just a bad cold, a bug, maybe a day off work, maybe skip the gym that week. I also developed hay fever and eczema during this...

The “caught a virus but didn’t get better” is really common and repeated everywhere. I certainly would have agreed. But actually, I’d been getting “a virus” every other month for some time, and it was many years before I was introduced to the idea that for pwME maybe things were going wrong...

AGM next month as well

I made this meme and wasn’t sure where to put it It’s a hand sinking in the sea and the ME clinic reaches out, high 5s and says “just pace” and the hand sinks.

Yeah but that’s got to be spelled out and written down, basic care isn’t working right now so it needs to be specified. Deaf people aren’t given translators or even a piece of paper with writing explaining things, palliative patients are shoved in noisy corridors for days…