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  1. Sid

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Yup, a 'scientific' seal of approval of sorts. That would be really scary and harmful.
  2. Sid

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    Ok so they were "mild-to-moderate" not mild. The subgroup of responders was doing 3,600 steps per day on average before the treatment. That's quite a lot considering that half of the general population walks less than that...
  3. Sid

    Lightning Process study in Norway - Given Ethics Approval February 2022

    It's hard to know what to make of this. On the one hand, we know that this therapy has been around for, what, 20 years and that thousands of ME patients have spent money pursuing it. Many new people get roped into doing it each year and we've heard reports of patients being pressured into doing...
  4. Sid

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    We've been down this road before with open label rituximab studies before the blinded RCT showed it was trending toward being worse than useless. The results here are strongly suggestive of a spontaneous improvement / regression toward the mean / placebo response in patients who were probably...
  5. Sid

    Metabolic dysfunction in myalgic encephalomyelitis/chronic fatigue syndrome not due to anti-mitochondrial antibodies, 2020, Nilsson et al

    Useful to know, though I don't recall anyone pushing this particular hypothesis.
  6. Sid

    A systematic review of somatic symptoms in children with a chronically ill family member, 2020, Lindsey et al

    Sickly people with chronic illnesses are likely to have sickly children, nothing surprising there. Why does our society have to psychologise everything?
  7. Sid

    Coronavirus - worldwide spread and control

    Supermarket here in Ireland actually had staff at the entrance only letting in people in batches every 45 minutes. Absolute panic and chaos. I'm glad I prepped 2 months ago when everyone thought I was crazy.
  8. Sid

    Coronavirus - worldwide spread and control

    I used to be in the "sick but never sick camp" for almost a decade. A few years ago, coinciding with an improvement in my overall ME/CFS, a cold came and since then I've had a cold once a year every winter around November time. They last a long time and affect me much more than other people...
  9. Sid

    Coronavirus - worldwide spread and control

    Videos like this are popping up on social media where Wuhan sounds like a zombie movie. Don't know if it's fake news but if it's real it looks like regular people are losing it from being housebound for what must seem like an eternity for people who don't have ME/CFS.
  10. Sid

    Anyone have trouble writing by hand?

    Yes, and the problem is worsening. I can't tell if it's due to ME or the fact that I haven't done any writing in so many years due to doing everything on the computer. When a new bank card arrived I realised I couldn't quite remember how to sign my name.
  11. Sid

    Coronavirus - worldwide spread and control

    Interesting thread on chinese plumbing and sewage: Would explain why so many videos have emerged on social media of authorities welding shut entire apartment buildings. More than the virus itself I'm concerned about supply chain disruptions. So many critical industries have been outsourced...
  12. Sid

    Assessing Functioning in adolescents with Chronic Fatigue Syndrome: Psychometric properties and Factor Structure of SSAS & SF36 PF, 2020, Loades

    Useful test. (If you're studying 90 year olds on a dozen meds, with dementia and multiple medical comorbidities.)
  13. Sid

    Using cognitive behaviour therapy techniques with people who hold delusional beliefs : Cox - Oct 2019

    The expansion of the CBT lobby into medical illnesses like schizophrenia (with disastrous consequences for patients who require medical treatment for their severe symptoms) is really just a turf war between psychologists and psychiatrists.
  14. Sid

    Left out (Norwegian documentary on ME)

    IV saline has no long-term effect on the human body. I don't see how it could help produce apparent improvements and even remissions 6 months out.
  15. Sid

    Depressive symptoms and objectively measured physical activity and sedentary behaviour throughout adolescence, 2020, Kandola et al

    Some people would argue that depression is a metabolic disturbance in the brain. Therefore, it's no wonder it is associated with physical inactivity and alterations in sleep cycle, appetite etc.
  16. Sid

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    This conclusion would seem to be contradicted by a more recent study Ryan referenced above which suggested that orthostatic hyperventilation comes after. https://doi.org/10.1161/hypertensionaha.113.02824
  17. Sid

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    That's disturbing. I know someone who got told orthostatic symptoms were due to 'fear of standing'.
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