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Having been in a situation where I was down to just a few hundred calories a day of liquid diet due to severe ME/CFS in the past, I can confirm that the gag/cough reflex starts to deteriorate as you start to move toward the very severe end of the spectrum. I was often finding myself choking on...

Goal setting, graded eating therapy, all the usual nonsense. These people will just never get it.

I think these tidbits tell us all we need to know about the true opinions held by this witness.

I personally never click on these Reddit threads anymore, they just make me despair.

Every Reddit thread we looked at on this forum going back years has been like this. This is because the view that ME/CFS is a functional disorder is the prevailing paradigm they are taught. Most doctors adhere to this view, it’s just that most of them are too smart to post their views on social...

Because when they get better they might realise they have memory loss and sue the consultant saying they were too sick to understand what they were agreeing to.

Unfortunately in the UK 90% of patients are still getting bilateral ECT for reasons that are unclear to me. This is not the case in many other countries. I'm guessing it's because no ECT research is being done in the UK and none of the work done abroad has penetrated NHS practice because NHS...

Capacity assessment for ECT has nothing to do with whether you want or don't want the treatment. Some patients are quite placid and agreeable to go along with whatever is being suggested but are deemed not to have capacity because they can't understand the complex information regarding risks and...

Huh? There were several prominent cases with a fatal outcome from 20+ years ago. None of this is new. The only thing that’s new is that families are utilising social media to push back against BPS witchcraft in NHS hospitals instead of suffering in silence.

That comment about patient selection really annoyed me. The whole point is that the treatments worked for nobody (recovery rate approx 5%).

This case had a fatal outcome. If people are too sick to attend in person they could have been asked to give evidence from home via Teams.

Is the GP still practising medicine?

The improvement in quality of their fur is amazing.

This study is a step in the right direction, though none of the areas under the curve are clinically useful as too many patients are misclassified.

SND.

To my knowledge, no one knows how/if it’s relevant to ME/CFS fatigue.

I do think adrenaline is involved in these events because I get similar symptoms due to sensitivity to dental local anaesthesia which contains it. There was an old thread many years ago of others saying the same thing on the previous forum.

Thanks to everyone involved in this important project. I’m sure they’ve been reading this thread so the arguments will probably come as no surprise. It will be interesting to see what they come up with. I hope it’s an actual response and not more of the same “you should be grateful and stop...

Yep. It makes me cringe every time I see it spelled out. When people in real life ask me what POTS is, I always just say postural tachycardia syndrome because the other name is tautological.

Because they don't believe that severe ME/CFS can result in gastroparesis. They are taught in medical schools and on the wards by their consultants that ME/CFS = all bodily systems are operating normally. So a mild case is imagining mild pain and a severe case is imagining severe pain, but it's...