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and contrary to fundamental administrative‑law principles. Not to mention fundamental scientific and ethical principles.

“There seems to be a want (both for patients and neurologists) to find organic causes where one certainly doesn’t exist”. “The main problem is the lack of access to help for patients… few neurologists specialise in this common problem”. Another added, “explaining the diagnosis is made more...

Well imagine how sick patients feel when endlessly confronted with doctors with this kind of attitude, who simply cannot say 'we don't know what is wrong or how to treat it', and instead insist on imposing non-diagnoses and non-treatments, and blaming it all on the patient when it inevitably...

Let me guess: Subjective self-report outcome measures only, and no serious discussion of the major methodological issues and limitations and the dangers of drawing conclusions on that basis.

Advancing knowledge on Long COVID requires a return to the fundamentals of measurement science. Thank you.

I live in the tropical north of Australia, in the monsoon region, so I don't get that exactly. But we do occasionally get a situation at the hottest time of year (roughly Oct-Dec), in mid-late afternoon when the sun has been blazing away all day in a clear sky, sometimes for weeks on end, and...

'perceived' niggles

Also worth trying nasal strips. Useful for both diagnostics and management. Use them for years before the surgery.

At the time everybody thought it was a psychosomatic thing. And way too many, especially within the medical profession, still do.

Turbinate reduction and correcting a deviated septum.

I am not unsympathetic to patients struggling when confronted with the appalling reality of their situation, including inappropriate diagnoses and explanations and treatments. But believing in and acting on unproven diagnoses and claims about the underlying causal process, and how to treat it...

That is a big plus. 40C @ 35% humidity is much less of a problem than 35C @ 70% humidity. Still not great, but a lot easier to deal with.

Exactly.

It is sickening to watch what we, and others, warned would happen unfolding as we said it would, while the government and medical authorities remain overwhelmingly in defensive denial.

The only hope I want is via realistic robust studies. Anything else is a methodological and ethical cesspit. I regard recovered patients – to the extent they actually exist – as one of the more misleading sources of insight, ideas, and progress. Especially when they are making a buck from their...

As so often is the case with ME/CFS we run hard into the limits of language. I have had a couple of sleep studies for sleep apnea, before and after nasal surgery. The after results showed conventionally normal sleep. More or less. Which just proves to me that we don't yet know how to measure...

Would premature endothelial senescence increase risk of cardiovascular events, particularly long-term?

Not my understanding of it. I take it to mean matching activity levels to current symptom levels. Which may or may not be a steady rate, depending on how stable and predictable symptoms are. For at least many patients, particularly early on when first learning how to apply pacing, they are...

ABSTRACT, with added spacing. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and long COVID are two post-viral diseases, which share many common symptoms and pathophysiological alterations. Yet a mechanistic explanation of disease induction and maintenance is lacking. This hinders...

Yep. It seems to have made little if any practical difference at all.