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Relevant paper from the company Toward the Autonomous AI Doctor: Quantitative Benchmarking of an Autonomous Agentic AI Versus Board-Certified Clinicians in a Real World Setting Abstract Background Globally we face a projected shortage of 11 million healthcare practitioners by 2030, and...

https://www.politico.com/news/2026/01/06/artificial-intelligence-prescribing-medications-utah-00709122 I’m generally more positive on use cases for AI/ML than some on these forums but this seems like a very bad use case for LLMs with significant questions on accountability. The current approach...

A couple of updates from the MEA This mentioned in the relevant thread https://meassociation.org.uk/2026/01/new-kent-and-medway-me-cfs-and-long-covid-specialist-referral-service/ And more details on the ‘Healthcare 4 ME’ team and the pilot they have been running here...

Well, this is interesting https://meassociation.org.uk/2026/01/new-kent-and-medway-me-cfs-and-long-covid-specialist-referral-service/

I’d encourage people who feel they can to try to build up a relationship with their MP or someone in their MPs office. Send them letters, let them know about the issues, share your experiences. It takes time, it takes a lot of effort that could be spent on other things, so is hard for people...

From speaking with @kacheston I’m confident that this cookie expiration issue is the problem I hit here and I thank her for her help. Understanding this is complex and not well documented but this site has good information This is most likely to hit Safari or Brave users completing the...

It certainly feels like there are more mentions, which seems good for awareness. How much understanding there is behind that and how much impact it will have we can’t be sure of course. But it feels positive to me. This is how politics and lobbying works. I tried to look for data on Hansard...

After a bit more digging I think this is the reason https://www.cookiestatus.com/safari/

Only just listened to this but glad I did and hope others do, within but most importantly outside the ME/CFS world. Chris is such a great communicator, I love hearing him speak. Well put together by SolveME too, nice, short, focused messages.

Given the contract notice is out, already has terms specified and this seems to have a closing date of 5 February 2026 I expect not. Sorry to sound negative on this but it doesn’t look to me as if they are seeking patient participation in defining what is needed here. Happy to be corrected if...

Well it’s full of buzzwords. I’d love to know what “treatment, rehabilitation and recovery support” they have evidence for. Enough to attract those wishing to expand their little rehabilitation empires but not enough to provide the support needed for people affected across an ICB which covers...

Also a little advice to people who intend to use the free text fields to write their responses down somewhere else. I was working my way through over a number of weeks and all was fine then I lost my progress. No idea why, @kacheston has kindly enquired with qualtrics support, but I think...

I share the concerns on how valid any of this is but also, credit to @Siebe for the work and trying something

I think the implication is every gene plays a part, as there are about 20,000 protein coding genes in the human genome.

Never zolpidem but I was prescribed zopiclone. Some years pre ME/CFS I was prescribed it and used it to great effect intermittently for a short period and slept very well and restfully each time. Post ME/CFS the effects were wildly different, with some help getting to sleep and then massive and...

Thanks, nice way of looking at it. I suppose that could strengthen confidence in their own replication attempts and crossovers with Long Covid in this and other studies (using All of Us and Sano GOLD data as well as UKB and DecodeME).

Do you think it would be fair to say that both analyses are pointing to the same broad genetic loci then @forestglip ? Maybe that’s what they’re getting at in the article? But it seems to be same data, different methods, same loci rather than replication.

A couple of the same specific genes showed up in both. But that’s not surprising and not replication I don’t think. And it really depends what they mean by regions in the article. After looking at it more my feeling/understanding is that PrecisionLife’s results support the findings of DecodeME...

A quick look at the sort of youtube/tiktok channels promoting it and clinics selling it, sounds like expensive woo

Yes! A great tip. Thanks for both @Kitty I use clippers (well, get someone else to) for a proper short neater job, but at times have also used this approach. Bunch my hair up in various places (more than just two) and hold with hair-ties or just elastic bands, then get someone to snip the hair...