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Although the author excluded participants with pronounced fatigability Which by definition would rule out most ME/CFS patients. So what is it they are studying?

Brevity and clarity work together, but they are not the same. Make it too brief and you start losing clarity by leaving out critical info. We do need to to be very careful that how we frame requests for help cannot be hijacked and perverted by BACME, et al, into meaning we just need more of...

And never will be. They know enough to understand that it is best to not ask potentially awkward questions about the basis for one's career and status and income.

I am not disagreeing with the underlying point Kitty is making, it is correct and important. The medical profession have indeed thoroughly botched this. That is beyond dispute, far as I am concerned. But better for this exercise to initially simply state the fact (that there are no treatments)...

I'd avoid anything that could be construed as the blame game, and that might get doctors offside. Keep it neutral.

Good work. 1. I prefer 'we' to 'patients'. If it is being published under the banner of a patient group then it is pretty clear who 'we' is, and implicitly includes carers. Also the 'us' in the previous line establishes who we are talking about, and 'we' follows on more naturally to my ear...

This is the core reason I cannot take this stuff seriously. Its proponents are not offering any means to test construct validity, and causation, which are both required to confirm its existence. In fact they seem to deliberately avoid such testing.

What about when doctors don't understand or respect their side of the social contract? Medicine is a captive market with effectively a single supplier (i.e. a monopolistic essential service). So agreement is not really a particularly helpful framing. All one can agree to is to see or not see a...

I remain of the view that ME/CFS and a large fraction of the currently broadly defined LC are going to be the same disease.

Denmark. That would be the home of the unrepentant Per Fink. Yes? –––––––––– Danish patients, and the ME Association, should demand full transparency and evidence for these outrageous defamatory claims, and full right of reply.

@voner Could you please add some line breaks in that abstract. Large blocks of text are very difficult to read for many of us.

Patients are getting shafted three times: First by the disease, then by the medical profession, then by governments and the insurance industry and broader society. Must be those sweet sweet secondary benefits of the 'sick role' we keep getting promised.

Sounds interesting, but it is behind a paywall.

disturbances of body image Yet again, how do they know that causal attribution is correct?

Any discussion in there about the adverse consequences of inappropriate psychosocial attributions and 'treatments'?

The fundamental problem being that there is no treatment. Difficult to access any when they don't exist.

Wise choice. :thumbup:

@Snow Leopard

Clear your calendar for a week afterwards. First 3 days or so after the first Shingrix were pretty rough for me. The second shot was much easier.

Yep. It is beyond dispute now that these clowns have no interest at all in our welfare. They have no excuses left whatsoever, and could not make their real intentions and agenda any clearer. The failure and corruption is as complete and brazen as it gets. They are beyond all saving or reform...