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Nor does the value of subjective self-report measures mean they can over rule objective measures when they contradict.

Though I have experienced gut troubles, including IBS, and still do. Just never nausea.

The issue is, of course, not the importance of subjective data. It has its place. The issue has always been: is it adequately controlled to reveal the known problems with subjective self-report data so they can be factored into the analysis? If it has been then it is useful data. If it has not...

What this stuff looks like is nothing so much as very hard evidence in favour of Upton Sinclair's dictum that: It is difficult to get a man to understand something, when his salary depends on his not understanding it.

iCBT was also no better than treatment as usual. "The effect of iCBT was not significantly different or slightly higher than treatment as usual after treatment" So what additional benefit is it offering?

Nausea is one symptom I have not experienced on any significant basis.

as a new entity, As a new label. Nothing more.

How many times can Horton be so wrong, behave so contrary to scientific and ethical principles, in such a blatant hypocritical manner, with such appalling consequences, and yet face zero accountability for it, and still remain so influential and honoured? And he ain't alone. Something sure is...

I am increasingly of the view that humans are rarely if ever sedentary (on a prolonged basis) for no good reason, and the real reasons for being sedentary rarely if ever include psycho-drama morality-play nonsense. That characterisation is just the superficial narrative mythologies we spin to...

Yeah, if I had to bet I on it would put my money on the psychosomatic gang trying to pull another public dummy-spit stunt like they did with NICE. But we will see soon enough. Fingers crossed.

Indeed. Nothing to apologise for. Furthermore, people have a right to tell their story, and there are very few places ME/CFS patients can do that in safety, to an understanding and sympathetic audience.

Sicker people tend to score worse on measures of work capacity. All of which could easily be explained as being caused by a chronic physical condition. Cutting edge stuff, isn't it.

It was pretty rough for me for about 3 days. So hopefully you will start improving soon.

I would use the word exertion. Overdoing cognitive or social activity seems to be as powerful a trigger for major decline/relapse as physical effort.

Do these modalities all operate independently of each other? That is, if one was not working properly would that affect others? Or is there some overlap, direct or indirect? If so, at what level, where in the pathway from initial sensing to the CNS/brain would such overlap take place?

One of the harder lessons from life is that smart people are usually not that smart. Or at least they are as subject to bias and wishful thinking as the rest of us. "The first principle is that you must not fool yourself – and you are the easiest person [for yourself] to fool."

I think there might be far more pressing issues in medicine and public health than trying to convince people to not kiss intimately. Besides it is a doomed strategy from the start, I would think.

Researchers argue that politicization is obscuring scientific findings and that reduced federal support undermines the need for expanded research, monitoring, and prevention. They emphasize that COVID’s chronic impacts could have lasting economic and societal consequences and remain poorly...

Although the author excluded participants with pronounced fatigability Which by definition would rule out most ME/CFS patients. So what is it they are studying?

Brevity and clarity work together, but they are not the same. Make it too brief and you start losing clarity by leaving out critical info. We do need to to be very careful that how we frame requests for help cannot be hijacked and perverted by BACME, et al, into meaning we just need more of...