Search results

It’s quite concerning that GPs are allowed to hand out psychotropic medications. GPs don’t know anything.

I recall a case like this being covered on the BBC. If I recall correctly, she had an ultra rare form of epilepsy that doesn’t show up on an EEG. But due to early life adversity, deprived background etc. it was dismissed as psych of course.

I can’t even dismiss it as incompetence or malice on behalf of the individual doctor. The whole system is literally geared to funnel patients into the psychosomatic scam - hordes of therapists, apps, self-help books.

The article is quite confusing. I can’t work out what the proposed diagnosis is. Why would it take 70 doctors to diagnose SLE? Then they inform us that the antibodies are actually against glutamate receptors so I’m assuming they’re referring to anti-NMDAR encephalitis. Then we’re told that there...

The WaPo story is very scant on details. It’s difficult to say what’s going on or what autoantibodies they have. Neuropsychiatric SLE is a known entity and there is absolutely nothing game changing or informative here other than mid-1990s third rate hospitals in the US being crap at ruling out...

Recently there was a study that showed that these autoantibodies occur in normal controls at the same rate as patients. This DTI study has no controls and is studying a concept that’s already been debunked.

Doctors refuse to read a one page pamphlet. This will get read by no one.

The thing is, to get through medical school and residency, you need to have huge energy levels and endurance. So of course they can't fathom what it's like to be us. I don't think the abuse will ever end.

It's a cross-sectional study so it's not possible to establish which comes first. Ofc, they assume that addressing psychological flexibility would treat FSS.

sounds like BS made up concept.

Participants were undergrad students who received course credits in exchange for participation.

Also, the symptoms may appear to settle over time because the patient learns to control them, to an extent, by reducing activity levels to almost nothing. I was much more symptomatic with daily huge crashes early on because I had no understanding of what was going on and was overdoing it. Try...

Stone’s neurobabble website says that symptoms like tingling and fatigue etc are FND. Basically, any symptom imaginable experienced by nearly everyone.

Wow. The effect isn’t as persuasive as the recent paper showing a causal association between EBV and MS but still.

At the end of the day, you can waffle your way through questionnaires that have nothing to do with the core symptoms of the illness but you can’t wish yourself into being able to do more.

I was about to say “this has been known for decades in PTSD” and then I clicked on the link and saw it was indeed from 2003.

Yep. Harms are reformulated as another diagnosis or reframed as the patient being mentally ill. Voila, my treatment is harmless and has a 100% efficacy rate. Recall how Crawley rediagnoses severe/very severe ME patients who get worse with activity as pervasive refusal syndrome. My local...

The studies claiming that have huge dropout rates.

So much for anxiety about standing.

Rigidity, perfectionism. The usual slander against us.