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I’m sorry but this simply isn’t true and it doesn’t do us any service to misrepresent the current mainstream medical opinion in the US and the UK which is almost uniformly hostile to us and holds that ME/CFS is a psychological issue. I presume this patient is making an appeal to authority and...

Others here may know more but I’m not aware of any studies that would suggest it’s sexually transmissible by showing for example that spouses or partners of ME patients have a greater chance of developing ME than the average person. The retrovirus (XMRV) claim was subsequently refuted by other...

It’s amazing how they think they can just rewrite history and claim they never said any of the false, exaggerated and downright hysterical and menacing messages they propagandised the public with 24/7 in 2021. I’m old enough to remember 2021, the year we were told by every grifter politician...

A long time ago when I was in college they made us read Greenhalgh’s book How to read a paper. This woman was venerated like a god for some reason. Scrolling through her Twitter feed is pretty hilarious. Block everyone who disagrees, block anyone who follows anyone who disagrees, Reddit-tier...

More chirpy feelgood nonsense.

I don't see how/why rheumatologists would be useful in LC care. They haven't exactly covered themselves with glory when it comes to dealing with ME/CFS referrals.

I’m amazed they didn’t just fob him off with an FND and depression diagnosis.

It amazes me how they can just gloss over the fact that this stuff is common in disintegrating brains and jump to a psychosocial conclusion. Even a fatal disease will not save you from these vultures pushing SSRIs.

In other words, all the “positive signs” that are supposed to rule-in a functional disorder (as opposed to it being a wastebasket diagnosis) that FND proponents like Stone keep bleating on about can in fact be caused by a neurological disease. We were assured by FND advocates that no known...

Lol

These sorts of articles only harm us further in the eyes of the medical profession. There is zero evidence that the sorts of symptoms POTS patients have are caused by a genetic form of EDS.

It's amazing how this fact alone doesn't make them stop and rethink.

A family member of mine with no history of ME/CFS or anything the medical system would regard as anxiety/somatisation developed serious hypertension overnight after the booster which persisted for months. She tried talking to the nurse and MD at her GP practice and she said they literally turned...

Letter to the editor by Bourne et al. cites an interesting study I had never heard of with much better methodology addressing the same research question (is POTS fear of standing). Masuki S, Eisenach JH, Johnson CP, et al. Excessive heart rate response to orthostatic stress in postural...

Authors’ reply to Tuller et al. Extinguishing fear conditioning has already been tried. In fact it’s been the cornerstone of treatment of these patients for decades (CBT, GET) and it hasn’t worked. Another letter pointed out that most patients have at some point been told their illness is...

The two papers are looking at two different things. The original BMJ paper he's referring to in the interview found that neuroticism and other psychiatric scales didn't predict ONSET of postviral fatigue syndrome. The Cvejic analysis of follow-up data found that higher neuroticism score predicts...

He also makes multiple false and defamatory claims against patients including that their critiques are non-scientific and akin to climate change denial (at the very end of the interview). He also strongly endorses GET, CBT and cognitive remediation (a treatment for depression btw) in this...

https://support.apple.com/en-gb/guide/iphone/iph5ede58c3d/ios

If machine learning people were interested in a project like this, it should be easy enough to collect large datasets with little cost. Millions of people out there already have a Fitbit or Apple Watch.

In milder cases, maybe. But what he doesn't see is the devastation in the days/weeks after such excursions outside of the energy envelope.