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Useful study, glad to see this published. No evidence of hysteria here but it doesn't sound like it was ME/CFS either, unless I am missing something. It sounds like for most people it was a self-limiting postviral fatigue syndrome.

Good questions. I don't think nutrition plays a role here. To alter the kynurenine pathway you'd would need to be on a weird mix of amino acids which you can't achieve eating normal food. Most people in those studies are probably eating something more or less akin to the standard Western diet...

Forgive my scepticism, but if that ends up being the case, it would be, to my knowledge, the first known instance of a psychiatric drug being disease-modifying in a true sense, in any condition. They all mask the symptoms. Some would argue that long-term pharmacotherapy with psychotropic drugs...

Could you say more about what’s wrong with their understanding of effort? If you feel up to it of course.

It should be easy enough to do an RCT of this. Widely available drug, no travel to infusion centre necessary unlike in the rituximab trial etc. @J.G I didn’t say the two drugs had the same mechanism of action. I was discussing dopaminergic interventions (including diet) more broadly. Years...

Abstract The importance of tryptophan as a precursor for neuroactive compounds has long been acknowledged. The metabolism of tryptophan along the kynurenine pathway and its involvement in mental disorders is an emerging area in psychiatry. We performed a meta-analysis to examine the...

Yeah. We can't paint these treatments with too broad a brush. While there are some commonalities like altering relevant neurotransmitters, aripiprazole is obviously much more selective in what you're trying to target. Something like keto on the other hand results in profound shifts in energy...

I would be cautious about dopaminergic drugs in ME/CFS. I think these approaches just mask the symptoms while the underlying disease process is still there and possibly getting worse while you are overexerting without the warning signal of PEM. A friend of mine who has had ME/CFS for 40+ years...

"The majority of patients (n= 25, 89%) were taught to correct respiratory CO2 levels during a single biofeedback training session." And? Did it cure them? :rolleyes:

For fuck's sake.

If deconditioning doesn’t cause ME/CFS, what possible reason is there to push, I’m sorry, encourage, the patient to increase their activity level? Who says it’s possible to increase activity level? As others have said, this is an obvious rhetorical shift to save their jobs. That’s the problem...

Sad state of affairs. No ideas, no clues - nothing.

When the very first posts started appearing on forums about CCI, my gut reaction was that this would end up being a bigger public relations disaster for us than XMRV. Everything that's happened since has only reaffirmed my view on this. Ironically, this sort of "advocacy" will ultimately...

The purpose of this sort of work seems to be to subsume ME/CFS within their model of FND.

Wow, it didn't take long for these grifters to expand their grift operation to the new goldmine of rapidly growing numbers of post-covid ME/CFS patients. Utterly despicable.

Surprisingly ok letter considering the BPS positions he has previously taken. Apart from the false claim that 1% of the population has ME/CFS, it seems reasonable.

I think another part of it is that our diagnosis is highly stigmatised and therefore very low status. People, consciously or not, don't want to be associated with that in any way. In addition, doctors are taught during training that if you ignore "functional" symptoms, they improve. Any...

It's quite an insidious trick that guys like this are up to and I'm sad to say it's working to hoodwink a lot of people. They present themselves as brave enlightened warriors against the nasty old medical establishment that told people with unexplained symptoms that their problems were 'all in...

You're right Mij. When I was in the process of becoming disabled & diagnosed, all the doctors, nurses, psychologists etc. that I had worked with (and in some cases also been friends with) for years instantly threw me under the bus. It was like being accused of witchcraft in medieval Europe...

It's like a deja vu seeing a whole new cohort of perplexed, frightened people who until recently thought they had rights and that the medical system was there to help people running into the same wall of lies and abuse we've been dealing with for decades.