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  1. Sid

    Robert Naviaux' Lab - News - from 2019 onwards

    There was. I'm still waiting for that paper to see the light of day. I figure it might never.
  2. Sid

    Coronavirus - worldwide spread and control

    China Tries 3,000-Year-Old Traditional Remedy on Virus Patients Well now I'm reassured. :rolleyes:
  3. Sid

    Response variability is associated with self-reported cognitive fatigue in multiple sclerosis, 2010, Bruce et al.

    There are tests (reading and vocabulary) that can estimate premorbid intelligence pretty well so you can match your participants with controls that way. Commonly done in neuropsych.
  4. Sid

    Response variability is associated with self-reported cognitive fatigue in multiple sclerosis, 2010, Bruce et al.

    Haven't read this paper yet but this is not a new concept. I recall reading a paper from 2007 or so about subjective cognitive complaints and increased standard deviation of performance on timed tasks in normal people. The lack of correlation between objective neuropsych tests and subjective...
  5. Sid

    Left out (Norwegian documentary on ME)

    Really great documentary!
  6. Sid

    Blogpost by Super Pooped (Hannah Radenkova): What no one tells you about being Housebound

    Well written. I can relate to what she said about the passage of time. Just the other day I was thinking how a conversation I had with a friend had happened "a few weeks ago" when in fact it was 4 years ago. I am always puzzled when somebody can't remember an interaction we had, or the...
  7. Sid

    Dealing with the unknown. Functional neurological disorder (FND) and the conversion of cultural meaning, 2020, Canna and Seligman

    The social support has just been tremendous and the financial rewards a real windfall.
  8. Sid

    Dealing with the unknown. Functional neurological disorder (FND) and the conversion of cultural meaning, 2020, Canna and Seligman

    I wonder how the subconscious brain chooses which symptom to fake. Why do some get non-epileptic seizures, others tremor, yet others functional paralysis or blindness. So creative. :rolleyes:
  9. Sid

    Functional Neurological Disorders - discussion thread

    There is no alternative diagnosis that better fits. But the problem with the FND term is that it carries a connotation of psychogenic causation even though the cause of these symptoms is unknown. 'Functional' in neurology and psychiatry is used to imply you have a psychiatric problem (despite...
  10. Sid

    Functional Neurological Disorders - discussion thread

    The FND diagnosis is a medical-sounding term designed to hoodwink patients into accepting it more easily than the previous diagnoses for the same diagnostic entity (hysteria, conversion disorder). It's really just old wine in new bottles. Because this field is so highly controversial, there is a...
  11. Sid

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Pretty good coverage. Not as ignorant or stereotype-laden as usual.
  12. Sid

    Well known, famous people reported to have Lyme Disease.

    I see "chronic mono" mentioned on social media. $100 says he has ME/CFS but was given these diagnoses by an alternative health practitioner.
  13. Sid

    Chronic fatigue syndrome following typhoid infection: neurasthenia, 2019, Gantait

    It's such a vicious cycle of abuse and marginalisation. Illness gets no funding --->> LOL your illness has no identifiable physical cause ---->> illness gets even less funding and becomes even more of a career suicide for researchers to enter the field and so on.
  14. Sid

    Wales (UK) - Govt petition P-05-926 To Provide a Chronic Fatigue Department in Wales

    The ME community in the UK should be campaigning for 'services' to be abolished, not new ones added. Given that there are zero evidence-based treatments for ME/CFS, the only 'treatment' you're going to get is CBT/GET and you expose yourself to the risk of coming on the radar of psych services...
  15. Sid

    Functional Neurological Disorders - discussion thread

    If you don't have family support and can barely subsist, they say it's attention seeking. If you have a supportive husband, they say it's secondary gains (symptoms mean you can save face while shirking work and domestic chores). If the spouse is unsupportive, the symptoms are due to a bad...
  16. Sid

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    The claim that 80% or 90% have abnormal neck MRI is an astonishing one. You'd expect such a finding to have appeared in the peer-reviewed literature by now. As far as I know, our patient population has been having structural MRI scans since the 1980s and no consistent abnormalities have been found.
  17. Sid

    PEM for those who are, or were, mild sufferers, how would you describe it?

    It was a challenge to recognise it within myself, let alone for anyone else around me to notice it or take it seriously. I would have described it as feeling somewhat 'under', or as if coming down with something for a few days after exertion, usually lasting three days, before returning to...
  18. Sid

    Fatigue severity in anti-nuclear antibody-positive individuals does not correlate with pro-inflammatory cytokine levels..., 2019, Hafiz et al

    I read a review about fatigue in lupus a few years ago and the treatment recommendation was antidepressant drugs based on the fact that there is no correlation between fatigue and 'objective' disease markers like inflammation. Lol.
  19. Sid

    Intra brainstem connectivity is impaired in chronic fatigue syndrome, Barnden et al., 2019

    Sounds plausible. As discussed years ago on the other forum, the RAS is involved in wakefulness/arousal, sleep, attention. If I recall correctly, a previous study found a correlation between brainstem neuroimaging alterations and pulse pressure, which would link in with problems with autonomic...
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