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I don't think their funding and publication chances would be negatively affected. Psychiatric disorders, including anxiety disorders, receive vastly more NIH funding than ME/CFS and are considered legitimate career paths for clinicians and researchers unlike the ME/CFS field which is considered...

This line is also used by some proponents of bogus medical treatments for ME/CFS. "Sure, there are no trials showing that this drug works, or in fact trials have shown that it doesn't work, but I have seen it work anecdotally and therefore I in my infinite wisdom and clinical judgement know that...

Great essay. Re: plausible mechanism, my impression is that the BPS crowd does not believe in the deconditioning hypothesis and they only use it in manuals for political reasons because they think it's less controversial and less likely to trigger the patient than stating their actual view...

The last thing that's needed is further "high quality, adequately powered RCTs" of water. It's highly irresponsible of Cochrane to even suggest wasting money and human resources on this. This organisation has gone down the shitter completely.

Awesome! As an aside, I also experienced some benefits from it in the past, though far milder than what you are describing, but could not continue taking it due to side effects. But just because a drug helps some people, it doesn't make it effective in general as a treatment for a condition...

Naltrexone is one of the few things that we can be 100% sure doesn't work for ME/CFS given how many clinicians prescribe it to our patient population in the States and how many of us have tried it on our own without any major benefit. It's so widely available and cheap compared to something like...

Never heard of this diagnostic entity. New ones springing up all the time. :rolleyes:

"Doctors are the same as lawyers; the only difference is that lawyers merely rob you, whereas doctors rob you and kill you too." - Chekov

Incredibly difficult read. What a monstrous Kafkaesque situation.

I'd love to know what happened to the other 10 who didn't make it to their 16th birthday. Probably died scared and confused because someone gave them a diagnosis of 'functional neurological disorder' when symptoms first came on.

Articles making these sorts of false and exaggerated claims are very unhelpful IMO. Nothing is known about the underlying biology of ME/CFS today, nothing whatsoever. The literature is a nuclear wasteland of one-off unreplicated results. If you had gone into a coma 35 years ago and woken up...

Has this study been approved by the research ethics committee at Stanford?

A lot of bad information in this article. It gives the impression that the ME/CFS diagnostic situation is cut and dry (appeal to authority: IOM report) and that Epstein Barr titres have something to do with the symptoms. It also presents naltrexone as a legitimate treatment despite there being...

In my experience, its severity fluctuates with the severity of my overall condition and it is worsened by PEM.

Doubt it. You see this sort of nonspecific result in all kinds of brain problems.

I expected the worst possible outcome because the issue is far bigger than ME/CFS, it's all psychosocial trials. The whole thing would need to be torn down and there is no way that the establishment is going to do willingly do that to itself. It would expose the entire rotten edifice of...

One paper I saw on functional weakness found abnormal activation in DLPFC which is also involved in affective disorders and this was interpreted as proof that emotional state was interfering with normal activation of motor pathways.

There's clearly a concerted global effort to rebrand all these disorders of unknown aetiology under the MUPS/functional umbrella and cart all these patients off to psych. It's a good tactical move now that PACE has been debunked. Instead of continuing to fight on the ME/CFS battlefield where...

OMG. I had no idea. I always thought the head position was quite painful and unnatural.

I don't want to criticise a graduate student too harshly. But this isn't an English literature or business administration degree, it's healthcare. So if your work is not up to scratch, they need to be told this. In a normal environment, this person's work would have been flagged as not being up...