Search results

Yeah, if I had to bet I on it would put my money on the psychosomatic gang trying to pull another public dummy-spit stunt like they did with NICE. But we will see soon enough. Fingers crossed.

Indeed. Nothing to apologise for. Furthermore, people have a right to tell their story, and there are very few places ME/CFS patients can do that in safety, to an understanding and sympathetic audience.

Sicker people tend to score worse on measures of work capacity. All of which could easily be explained as being caused by a chronic physical condition. Cutting edge stuff, isn't it.

It was pretty rough for me for about 3 days. So hopefully you will start improving soon.

I would use the word exertion. Overdoing cognitive or social activity seems to be as powerful a trigger for major decline/relapse as physical effort.

Do these modalities all operate independently of each other? That is, if one was not working properly would that affect others? Or is there some overlap, direct or indirect? If so, at what level, where in the pathway from initial sensing to the CNS/brain would such overlap take place?

One of the harder lessons from life is that smart people are usually not that smart. Or at least they are as subject to bias and wishful thinking as the rest of us. "The first principle is that you must not fool yourself – and you are the easiest person [for yourself] to fool."

I think there might be far more pressing issues in medicine and public health than trying to convince people to not kiss intimately. Besides it is a doomed strategy from the start, I would think.

Researchers argue that politicization is obscuring scientific findings and that reduced federal support undermines the need for expanded research, monitoring, and prevention. They emphasize that COVID’s chronic impacts could have lasting economic and societal consequences and remain poorly...

Although the author excluded participants with pronounced fatigability Which by definition would rule out most ME/CFS patients. So what is it they are studying?

Brevity and clarity work together, but they are not the same. Make it too brief and you start losing clarity by leaving out critical info. We do need to to be very careful that how we frame requests for help cannot be hijacked and perverted by BACME, et al, into meaning we just need more of...

And never will be. They know enough to understand that it is best to not ask potentially awkward questions about the basis for one's career and status and income.

I am not disagreeing with the underlying point Kitty is making, it is correct and important. The medical profession have indeed thoroughly botched this. That is beyond dispute, far as I am concerned. But better for this exercise to initially simply state the fact (that there are no treatments)...

I'd avoid anything that could be construed as the blame game, and that might get doctors offside. Keep it neutral.

Good work. 1. I prefer 'we' to 'patients'. If it is being published under the banner of a patient group then it is pretty clear who 'we' is, and implicitly includes carers. Also the 'us' in the previous line establishes who we are talking about, and 'we' follows on more naturally to my ear...

This is the core reason I cannot take this stuff seriously. Its proponents are not offering any means to test construct validity, and causation, which are both required to confirm its existence. In fact they seem to deliberately avoid such testing.

What about when doctors don't understand or respect their side of the social contract? Medicine is a captive market with effectively a single supplier (i.e. a monopolistic essential service). So agreement is not really a particularly helpful framing. All one can agree to is to see or not see a...

I remain of the view that ME/CFS and a large fraction of the currently broadly defined LC are going to be the same disease.

Denmark. That would be the home of the unrepentant Per Fink. Yes? –––––––––– Danish patients, and the ME Association, should demand full transparency and evidence for these outrageous defamatory claims, and full right of reply.

@voner Could you please add some line breaks in that abstract. Large blocks of text are very difficult to read for many of us.