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Did a beta-blocker help you? Propranolol 20 mg in the morning seems to help lower my HR but doesn't seem to do much else to help my OI (which isn't severe, but is still quite disabling during PEM). I may trial mestinon.

Do you have a PoTS diagnosis? Or dysautonomia / OI?

Presumably because there is a signal in the data.

This has come from this group's research on ME/CFS, e.g., https://pmc.ncbi.nlm.nih.gov/articles/PMC8313851/

Merged thread [Radio segment] BBC Radio Cornwall covers ME/CFS and discusses the DHSC delivery Plan

Can you describe the "chest tightness"? I am wondering if it's the same as my "chest heaviness" that is one of my main symptoms of orthostatic intolerance. It feels as though there's a weight in my chest and that I need to take a deep breath (to the top of my breath).

I got some bloods taken recently and had the same problem, so no folate reading. I don't know much about hemolyzed samples.

Without going too off topic, I would think the chance of discovering an overall test or drug to treat long covid is essentially zero, because the group is so heterogeneous, even compared with ME/CFS. So in that respect, Paul is probably right.

Ah, I hadn't seen that. The gun looks like it's an Airsoft gun or something similar.

Where is his sister mentioned?

https://www.livpost.co.uk/professor-paul-garner-was-delighted/

https://www.manchestereveningnews.co.uk/news/uk-news/this-explanation-long-covid-helped-31193899 New Paul Garner just dropped.

Does the NHS primarily use SNOMED or ICD, or both? I'm particularly interested in the electronic health record systems used in primary care.

So the test most likely to be abnormal was plasma viscosity, which I don't believe I've ever heard of....? I'm assuming it's similar to ESR.

They have always as far as I know represented the staff working in the specialist NHS clinics. I'm sure you can join if you work outside the NHS, but it's very much revolves around the NHS clinics. I don't know what percentage of NHS staff in these clinics are members of BACME.

Thanks. I did note the date but missed that discussion. I don't know why the MEA are only posting about it today.

BACME Calls for Cochrane to Withdraw Outdated Exercise Review for ME/CFS https://bacme.info/wp-content/uploads/2025/02/BACME-statement-regarding-the-decision-of-the-Cochrane-Collaboration_.pdf

Quite a loaded name for a conference.

"people with overweight" Is that a new thing? Bizarrely, I first saw this usage only this morning in the title of this article: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(25)00355-1/fulltext

Probably for the best.