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Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018
I attended the NICE Engagement and I also brought up things like Vit B12, FII accusations, Bedbound not being take seriously or understood in any meaningful way, having no visits from medical staff; so therefore we have no real understanding of severe. We need a severity scale in order to...- Tilly
- Post #143
- Forum: Advocacy Projects and Campaigns