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Oh, I read about the Lyme vaccine. A bunch of people blamed the vaccine for common symptoms with no proven connection to the vaccine, and the manufacturer took it off the marker because it wasn't a popular enough product to fight over it. Pretty depressing.

This is one of the most disturbing ME papers I've ever read. A 27 year-old man came into a doctor's office, very anxious, with a multitude of symptoms, including textbook PEM. He's convinced he has ME, and his symptoms are glaringly obvious--PEM and being severely debilitated, unable to work...

Missing the meaning and provoking resistance; a case of myalgic encephalomyelitis https://academic.oup.com/fampra/article/13/1/106/512679?login=false By Chris Butler and Stephen Rollnick, published 1996 Abstract Background The interaction between a clinician and a patient who put his problems...

Wouldn't the possibility of debilitating sequelae make vaccines more attractive?

Lyme Disease is pretty nasty. I got it once, years before I got ME. There was no bullseye rash and the symptoms came one after another--I didn't seek treatment immediately because the symptoms didn't appear to have a common cause. At different points, I had cold-like symptoms and dizziness...

Thank heavens. Then they'll be familiar with ME when they become doctors.

This is really good. Dr. Sommerfelt strikes me as a scientist who values meaningfully involving patients to gather their experiences, and understands and applies how they explain the illness--that PEM causes a reduction in function for several days.

Another excellent video on long Covid from Ed Yong and PBS. Discusses all the aspects that are important to patients.

I love seeing a study that admits it found nothing. We need more of these! It will prevent researchers from turning over the same stone repeatedly.

Wow, never expected Claude Shannon to come up here.

I lost three years of my life because I had ME without knowing it, because doctors wouldn't diagnose it. I discovered ME by a Google search.

Now imagine how many papers are egregiously bad methodology are out there, but are challenged by nobody because their subject isn't one of enormous public interest.

It would be easier to list the trials we can trust over the trials we couldn't. There are studies that deliver certain results, and a long tail of studies that mean little, either because they're highly speculative, or methodologically flawed.

Interesting. Gene expression--the search for how cells choose which proteins to make and how much--has perplexed scientists for so long. Hopefully this will unveil something.

I'm surprised you have a negative opinion of this. I think it's great. People at one of the world's largest drug companies are outright saying LC is biological. It's part of a trend of post-infectious illness gaining acceptance within mainstream science and medicine. It makes me wonder if they...

Seems like a gray area gray area if you ask me.

The problem with that is...there's an obvious mechanism. "True" psychosomatic diseases, like what Chalder and Wessely support, don't have actual causes, it's just Anxiety ??? Profit! We accept that health issues can have physical or mental/emotional causes. But the modern psychosomatic school...

When I got a sleep study I slept about 3 hours out of the whole night. I think the main cause was that the wires prevented me from tossing turning naturally. I move around a lot, often waking up in a different position than the one I fell asleep in, or finding pillows on the floor.

This describes my experience perfectly, but unfortunately, she uses this as evidence ME is mental. A better model is that of oscillation of a dynamical system. When there's a delay between the input and output of a system, oscillation emerges. We see this in springs, where the the force...

Well, the argument that it's easier to get hired in a couple weeks to deliver pizzas for $15/hr makes it unlikely a rational person would fake illness. However, the doctor in that thread claimed pwME subconsciously made themselves sick. Which I don't think is a falsifiable statement. There's no...